Search
Search
About
Log in
Join
Experiences with
Actemra
Posts
Communities
778 public posts
Filter results
Actemra frequency query
Hi Everyone, I’m wondering if there is anyone on here who is managing their
Actemra
injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
Hi Everyone, I’m wondering if there is anyone on here who is managing their
Actemra
injection pen shots four-weekly? I’m interested to know why your shots are spaced out to 4 weekly (or more), and for how long and how successfully you are managing this. Thanks. 😘
LemonZest11
in
PMRGCAuk
1 year ago
Biphosphonates Questions
Currently at 2mg prednisone from 60 , and
Actemra
every other week. Just tapered to 2 mg quickly (one year) maybe because I’ve had GCA before? Now for the Biphosphonates question.
Currently at 2mg prednisone from 60 , and
Actemra
every other week. Just tapered to 2 mg quickly (one year) maybe because I’ve had GCA before? Now for the Biphosphonates question.
Pamk1949
in
PMRGCAuk
11 months ago
still no answers
I have a question not connected to the above - is anyone on
Actemra
? does it work better with fewer side effects to Methotrexate? I so want to taper to 5mg. And the doctors are all saying I must start alendronic acid. Soon.
I have a question not connected to the above - is anyone on
Actemra
? does it work better with fewer side effects to Methotrexate? I so want to taper to 5mg. And the doctors are all saying I must start alendronic acid. Soon.
Bennijax
in
PMRGCAuk
11 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Actemra
Does anyone know if
Actemra
should be stopped for a UTI...? I suspect I might have one....on my 17th injection today....still waiting for Doc to submit authorization for urine sample
Does anyone know if
Actemra
should be stopped for a UTI...? I suspect I might have one....on my 17th injection today....still waiting for Doc to submit authorization for urine sample
Joseph14612
in
PMRGCAuk
1 year ago
methotrexate
I am to continue with weekly
Actemra
as well....
I am to continue with weekly
Actemra
as well....
Joseph14612
in
PMRGCAuk
9 months ago
Has anyone had to stop actemra?
Anyways I’m back up to 10mg of prednisone and not going back on
Actemra
because of diverticulitis. I was wondering if anyone else had a similar situation of having to abruptly stop
Actemra
and how did it go?
Anyways I’m back up to 10mg of prednisone and not going back on
Actemra
because of diverticulitis. I was wondering if anyone else had a similar situation of having to abruptly stop
Actemra
and how did it go?
pmac22
in
PMRGCAuk
1 year ago
GCA flair?
I have been on
Actemra
since October. I recently reduced my prednisone to 1mg a day. I am starting to get sharpe pain, they only last for a second but come and go mostly at night. One night they actually woke me up. I notice if I sleep on my right side my head feels odd in the morning.
I have been on
Actemra
since October. I recently reduced my prednisone to 1mg a day. I am starting to get sharpe pain, they only last for a second but come and go mostly at night. One night they actually woke me up. I notice if I sleep on my right side my head feels odd in the morning.
Plains
in
PMRGCAuk
1 year ago
Increase Prednisone?
They put me on antibiotic Augmentin for 10 days...rheummy said skip
Actemra
this week,,,By Thursday, I got medical center to look at my foot, and after imaging, etc., they said i have a torn achilles tendon...foot is swollen, black and blue...they want to avoid surgery since I am on plavix and countless
They put me on antibiotic Augmentin for 10 days...rheummy said skip
Actemra
this week,,,By Thursday, I got medical center to look at my foot, and after imaging, etc., they said i have a torn achilles tendon...foot is swollen, black and blue...they want to avoid surgery since I am on plavix and countless
Joseph14612
in
PMRGCAuk
1 year ago
Starting Tocilizumab
Hello, mighty warriors 😃 Looking for anyone with experience of Tocilizumab (
Actemra
) infusions ….I’m due to start in a week, just read all the possible side effects ( as you do when starting new drug ) and so looking for people with experience of it good or bad , so I can be bit more prepared 😅 Thank
Hello, mighty warriors 😃 Looking for anyone with experience of Tocilizumab (
Actemra
) infusions ….I’m due to start in a week, just read all the possible side effects ( as you do when starting new drug ) and so looking for people with experience of it good or bad , so I can be bit more prepared 😅 Thank
Sunshine-star5
in
NRAS
8 months ago
Immunosuppressed on Actemra???
Does anyone know if being on
Actemra
puts you more or less at risk of covid complications? I had one doctor tell me I was actually safer on
Actemra
bc it is being used as a treatment for Covid. And, anyone know if
Actemra
affects our ability to mount an immune response to vaccines?
Does anyone know if being on
Actemra
puts you more or less at risk of covid complications? I had one doctor tell me I was actually safer on
Actemra
bc it is being used as a treatment for Covid. And, anyone know if
Actemra
affects our ability to mount an immune response to vaccines?
emmamom
in
PMRGCAuk
1 year ago
Stop Actemra for good?
Have had about a year of monthly
Actemra
infusions (monthly infusions not weekly shots). I don’t feel different after them. Why shouldn’t I stop taking them? I still have some heaviness in arms/legs and some minor pains on occasion. Just wonder if they are still needed.
Have had about a year of monthly
Actemra
infusions (monthly infusions not weekly shots). I don’t feel different after them. Why shouldn’t I stop taking them? I still have some heaviness in arms/legs and some minor pains on occasion. Just wonder if they are still needed.
Greytree
in
PMRGCAuk
1 year ago
Tapering
I am in the US, started at 60 mg prednisone last summer 2022, 20 weeks of
Actemra
for PMR/GCA, and many back up and down tapering ...and after 8 days of headache at 16 mg, headache went away and I started 15 mg today. Is this what I am to expect going forward?
I am in the US, started at 60 mg prednisone last summer 2022, 20 weeks of
Actemra
for PMR/GCA, and many back up and down tapering ...and after 8 days of headache at 16 mg, headache went away and I started 15 mg today. Is this what I am to expect going forward?
Joseph14612
in
PMRGCAuk
1 year ago
GCA flare dosage
I've had GCA and PMR for 10 months, on
Actemra
and was down to 9mg prednisone. When I went from 9 to 8.5mg I had a major flare and went up to 15mg. The flare continued and Rheumatologist said go to 20mg, maybe 25mg. After 2 and a half weeks on 20mg I thought I started to stabilize.
I've had GCA and PMR for 10 months, on
Actemra
and was down to 9mg prednisone. When I went from 9 to 8.5mg I had a major flare and went up to 15mg. The flare continued and Rheumatologist said go to 20mg, maybe 25mg. After 2 and a half weeks on 20mg I thought I started to stabilize.
potterylady
in
PMRGCAuk
1 year ago
Nerve pain in."girdle" area...started as shocks now constant severe pain.
I started
Actemra
2 months ago and have normal inflammation markers...been many years since that happened. Based on that I was told to drop from 30 to 25 pred and it was ok. Most of the things I was dealing with were my lower legs.and knees which were not PMR issues.
I started
Actemra
2 months ago and have normal inflammation markers...been many years since that happened. Based on that I was told to drop from 30 to 25 pred and it was ok. Most of the things I was dealing with were my lower legs.and knees which were not PMR issues.
Wallysma
in
PMRGCAuk
1 year ago
Major GCA Headache with 1/2mg taper
Last night my head hurt SO badly--no relief after 2 tylenol and 1 motrin, so I took my
Actemra
shot (was supposed to take it this morning) and it helped the headache. Also, the day before the shot is due, my hips, shoulders, neck are on fire.
Last night my head hurt SO badly--no relief after 2 tylenol and 1 motrin, so I took my
Actemra
shot (was supposed to take it this morning) and it helped the headache. Also, the day before the shot is due, my hips, shoulders, neck are on fire.
potterylady
in
PMRGCAuk
1 year ago
very high cholesterol
I already inject
Actemra
weekly. I’m a bit hesitant to start a second biologic. My question is has anyone else had to inject repatha and how did it work for you. I am still on hydrocortisone tablets twice a day and
Actemra
weekly. Thank you. Peggy
I already inject
Actemra
weekly. I’m a bit hesitant to start a second biologic. My question is has anyone else had to inject repatha and how did it work for you. I am still on hydrocortisone tablets twice a day and
Actemra
weekly. Thank you. Peggy
pmac22
in
PMRGCAuk
1 year ago
Possibly new on Actemra, what should I know?
Hi, I will likely be on
Actemra
in a week, providing OK tests. Sofar been on only pred in moderate dose (strated at 80 due to eye involvement and tapered down to 2 in about a year.
Hi, I will likely be on
Actemra
in a week, providing OK tests. Sofar been on only pred in moderate dose (strated at 80 due to eye involvement and tapered down to 2 in about a year.
Gilmor
in
PMRGCAuk
1 year ago
First Biologic Drug Approved for PMR
Ot acts like
Actemra
, which is only approved for GCA. At this point, it is approved in the United States. Hopefully other countries will follow.
Ot acts like
Actemra
, which is only approved for GCA. At this point, it is approved in the United States. Hopefully other countries will follow.
Knit11
in
PMRGCAuk
1 year ago
gca&actemra&steroid myopathy
Need to message PMRpro. Story too long. Pro is familiar. I go back almost 10 years. How can I do this. Or. Can pro contact me. Thanks
Need to message PMRpro. Story too long. Pro is familiar. I go back almost 10 years. How can I do this. Or. Can pro contact me. Thanks
Nap1
in
PMRGCAuk
9 months ago
Numbness in both feet
Numbness in both feet for the last 7 months....started prednisone about a year ago,
Actemra
weekly injection 13 weeks...are the numb feet due to prednisone or something else...glucose in the morning is about 100...taking glipzide for sugar, zedia and repatha for high cholesteral due to
Actemra
...I have
Numbness in both feet for the last 7 months....started prednisone about a year ago,
Actemra
weekly injection 13 weeks...are the numb feet due to prednisone or something else...glucose in the morning is about 100...taking glipzide for sugar, zedia and repatha for high cholesteral due to
Actemra
...I have
Joseph14612
in
PMRGCAuk
1 year ago
1
...
5
6
7
...
39
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
PMRGCAuk
671 results
NRAS
78 results
LUpus Patients Understanding and Support
8 results
View top 10 communities
Sort by
Most Relevant
Newest