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Actemra
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Biologics and appetite
First Humira, then
Actemra
and recently I started Xeljanz. The curious thing is my diet over the last few years has been awful as all the healthy foods I liked turned my stomach. Prior to biolgics I enjoyed cooking and clean eating with fresh fruit, vegetables etc.
First Humira, then
Actemra
and recently I started Xeljanz. The curious thing is my diet over the last few years has been awful as all the healthy foods I liked turned my stomach. Prior to biolgics I enjoyed cooking and clean eating with fresh fruit, vegetables etc.
Hidden
in
NRAS
5 years ago
Roactemra not working
Hi I have been in roactemra injections 2.5 years and now has stopped working.Has this happened anyone else?
Hi I have been in roactemra injections 2.5 years and now has stopped working.Has this happened anyone else?
Trace1974
in
NRAS
5 years ago
“The system is broken, and all the financial incentives are lined up to keep it broken.”
Actemra
- most disturbing. Being considered for GCA medication. https://www.statnews.com/2017/06/05/
actemra
-rheumatoid-arthritis-fda/ For all the questions about
Actemra
, its market and Genentech’s profit potential keep growing.
Actemra
- most disturbing. Being considered for GCA medication. https://www.statnews.com/2017/06/05/
actemra
-rheumatoid-arthritis-fda/ For all the questions about
Actemra
, its market and Genentech’s profit potential keep growing.
Ruadh
in
PMRGCAuk
5 years ago
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GCA Prednisone and Depression- Help?
As of now, she's on
actemra
sub-cut injections on a weekly basis. She hasn't taken any steroids for seven days, and things are still touch-and-go. A week into the
actemra
treatment, her doc called us back to see the quantiferon test came back positive.
As of now, she's on
actemra
sub-cut injections on a weekly basis. She hasn't taken any steroids for seven days, and things are still touch-and-go. A week into the
actemra
treatment, her doc called us back to see the quantiferon test came back positive.
alfabetgrl
in
NRAS
5 years ago
Prednisone tapering and mood
I am on monthly
Actemra
infusions and now down to 2mg prednisone with no ill effects except that I have noticed my mood is quite low and dull. When I started on 100mg and as I reduced I felt positive and and energized (my energy is not affected now) and excited about life.
I am on monthly
Actemra
infusions and now down to 2mg prednisone with no ill effects except that I have noticed my mood is quite low and dull. When I started on 100mg and as I reduced I felt positive and and energized (my energy is not affected now) and excited about life.
Hidden
in
PMRGCAuk
5 years ago
Has Actemra been helpful for PMR?
But she said if I got stuck, she would like to try
Actemra
(tocilizumab). Does anyone on this forum have experience with this drug? Did it work? What were the side effects? If you live in the States, did Medicare pay for it (it can be very expensive here)?
But she said if I got stuck, she would like to try
Actemra
(tocilizumab). Does anyone on this forum have experience with this drug? Did it work? What were the side effects? If you live in the States, did Medicare pay for it (it can be very expensive here)?
lew49
in
PMRGCAuk
5 years ago
Weakness in Thighs - how to remedy
I have a call into the Rheumatologist also currently at 40mg Methylprednisolone +
Actemra
week 7. Thank you in advance for any advice! /mk
I have a call into the Rheumatologist also currently at 40mg Methylprednisolone +
Actemra
week 7. Thank you in advance for any advice! /mk
Mks9558
in
PMRGCAuk
5 years ago
Suffering with flu!
(
Actemra
for GCA)
(
Actemra
for GCA)
christine2715
in
PMRGCAuk
5 years ago
Everything hurts - almost.
During this time I have been on Zeljanz, Orencia - now
Actemra
for the past 4 months plus 25mgs of Methotrexate.
During this time I have been on Zeljanz, Orencia - now
Actemra
for the past 4 months plus 25mgs of Methotrexate.
Laurapc
in
Arthritis Action
5 years ago
GP Visit
The reason being she wanted to see how effective
Actemra
and MTX is with the minimum amount of Pred. I don't think I can wait that long for something to be done so I am going to ask if I can up my dose by 1mg daily to find a level I can function at.
The reason being she wanted to see how effective
Actemra
and MTX is with the minimum amount of Pred. I don't think I can wait that long for something to be done so I am going to ask if I can up my dose by 1mg daily to find a level I can function at.
Laurapc
in
PMRGCAuk
5 years ago
The Drama Queen is back!
😕😬 Maybe I did have PMR and it has gone into remission thanks to
Actemra
which really did cure all my symptoms for a while and brought my CRP down to normal for the first time in years. I am still on
Actemra
as Dr. House told me to stay on it till we know for sure.
😕😬 Maybe I did have PMR and it has gone into remission thanks to
Actemra
which really did cure all my symptoms for a while and brought my CRP down to normal for the first time in years. I am still on
Actemra
as Dr. House told me to stay on it till we know for sure.
Gaijin
in
PMRGCAuk
5 years ago
Advice needed- is this normal- should I ride it out longer?
The
Actemra
does make me exhausted. I am not scheduled to go back to Rheumatica until November 29... Thanks for your input- always valuable!
The
Actemra
does make me exhausted. I am not scheduled to go back to Rheumatica until November 29... Thanks for your input- always valuable!
Mks9558
in
PMRGCAuk
6 years ago
Hope or hopeless
On prednisone,
Actemra
, beginners Plaquinil, Forteo and pain meds. Very depressed from pain and unable nor do I want to do things. Cooking is a major challenge and so I don’t do it. Hopeless and sad.
On prednisone,
Actemra
, beginners Plaquinil, Forteo and pain meds. Very depressed from pain and unable nor do I want to do things. Cooking is a major challenge and so I don’t do it. Hopeless and sad.
Leeleep
in
PMRGCAuk
6 years ago
Sour sweat odor
Or could this be from prednisone and
Actemra
? Or some combination of the 3?
Or could this be from prednisone and
Actemra
? Or some combination of the 3?
GCA_Patien
in
PMRGCAuk
6 years ago
Prednisone VS Methylprednisolone
- she deals there is something else going on - 1) I may not be metabolizing the prednisone in my liver properly 2) may have a pinched nerve or nerve in my neck For number 1 above she wants to put me on 48 mg of methylprednisolone for 1 week then down to 40 mg and stop prednisone now(I am also on
Actemra
- she deals there is something else going on - 1) I may not be metabolizing the prednisone in my liver properly 2) may have a pinched nerve or nerve in my neck For number 1 above she wants to put me on 48 mg of methylprednisolone for 1 week then down to 40 mg and stop prednisone now(I am also on
Actemra
Mks9558
in
PMRGCAuk
5 years ago
Disappointed with Actemra
After being on
Actemra
since May 1st, I am now experiencing a full blown flare. At first it was like a miracle, my markers went down to normal and I was symptom free for weeks tapering from 6 to 5.
After being on
Actemra
since May 1st, I am now experiencing a full blown flare. At first it was like a miracle, my markers went down to normal and I was symptom free for weeks tapering from 6 to 5.
Gaijin
in
PMRGCAuk
6 years ago
CAROTID ARTERY BRUITS
He’s referring me for scan of carotid arteries now before starting
Actemra
after a trial of Leflunomide - (it didn’t do much except make my hair fall out by the handful)! Has anyone else dealt with carotid artery issues/narrowing caused by gca inflammation and not plaque?
He’s referring me for scan of carotid arteries now before starting
Actemra
after a trial of Leflunomide - (it didn’t do much except make my hair fall out by the handful)! Has anyone else dealt with carotid artery issues/narrowing caused by gca inflammation and not plaque?
Hev1964
in
PMRGCAuk
6 years ago
My Mom, Predinose, Actemra Infusions, and today a clean bill of health.
<3 My Mom and I stopped her
Actemra
infusions in May this year.
<3 My Mom and I stopped her
Actemra
infusions in May this year.
Joyismami
in
PMRGCAuk
6 years ago
Tapering Pred on Actemra Feeling Bad @4Mg... Normal?
Is anyone else on
Actemra
and tapering off Pred? (I called my doc to ask for a blood test to check markers, I feel that bad.) Thanks!
Is anyone else on
Actemra
and tapering off Pred? (I called my doc to ask for a blood test to check markers, I feel that bad.) Thanks!
PMRinsdca
in
PMRGCAuk
6 years ago
ROACTEMRA
Hi everyone. I am looking for anyones experience of taking Roactemra and well advice from anyone really! . I started weekly injections 3 weeks ago. First couple of days I felt pretty good then I got symptoms of sore roof of mouth, very dry mouth, thirst, general feeling of dehydration. My eyes began
Hi everyone. I am looking for anyones experience of taking Roactemra and well advice from anyone really! . I started weekly injections 3 weeks ago. First couple of days I felt pretty good then I got symptoms of sore roof of mouth, very dry mouth, thirst, general feeling of dehydration. My eyes began
Mouseling
in
NRAS
6 years ago
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