Does anyone get Sweet's syndrome lesio... - Sweet's Syndrome UK

Sweet's Syndrome UK

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Does anyone get Sweet's syndrome lesions in their ears?

Shell567 profile image
Shell567AdministratorSweet's Syndrome UK
4 Replies

I often get lesions around or in my ears that normally resolve within 1-2 weeks. Despite the fact that the lesions are small, they can still be incredibly painful. I know that SS can affect the ears, but I was wondering how many other Sweeties on this HU community have problems with this.

Thanks.

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Shell567
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4 Replies
Shell567 profile image
Shell567AdministratorSweet's Syndrome UK

On our Sweet's Syndrome UK FB group, a few members have mentioned in the past that they even get lesions up their nose. Fortunately, that's something I don't have problems with.

REVIN4GOD profile image
REVIN4GOD

I actually had a lesion in my ear that was part the the eardrum. I had to have a graft to repair the eardrum.

Shell567 profile image
Shell567AdministratorSweet's Syndrome UK in reply to REVIN4GOD

Many thanks for replying, Revin4God.

I'm fortunate that my ear lesions have never caused anything that serious. I hope the graft worked well.

REVIN4GOD profile image
REVIN4GOD in reply to Shell567

The graft was very successful. Thank you.

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