Hi to everyone, I was recently diagnosed with SS, red painfull sores,fever, flu like symptoms, headaches, and severe pain in in lower legs mainly around the knees and ankles, I think I took more painkillers in 3 wks than I have in my life.. I was wrongly diagnosed for a few wks Dr's thought I had shingles and gave me meds for that but after blood results came back negative did a biopsy and came back with SS. Am now taking prednisone started on 50mg a day seemed to be helping but once I tapered off to about 12mg a day spots and pain started to come back. I am now taking about 60 mg a day for 7 days spots have cleared, pain in legs still there but no painkillers needed and going to start cutting down but from what I am reading I am concerned it will just return, I have managed to get in to see a dermotologist tomorrow and I am hoping that they have some knowledge of SS. Is SS something that will go away or are med required to control it? I would love to here from all, I am from Melbourne Australia.
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