Hi. My daughter is 9 months old and when she was 3 months she had open heart surgery done, she still has a few problems and will need further ops in the future.
Ive just been told that she has reflex anoxic seizures. Any advice would be really helpful, when she has an attack I get really worried because she has a heart condition and I panic xx
The most important thing to remember is that although RAS is frightening to witness, it is not life threatening. You can read information on RAS on our website stars.org.uk please do have a read through our patient stories, many people find that they give peace of mind just knowing that they're not the only parent of a child with RAS.
If you have any questions about your daughter's condition, please do contact us, info@stars.org.uk or 01789 867503
Best wishes
Rachel - Patient Services Associate - STARS
My daughter is 16 diagnosed with positive tilt table test in July. Over the past month fainted 5 times no warning for upto 5 minutes 
Vasovagel/ Neurocardiogenic Syndrome
Reflex anoxic seizures HELP!
Midodrine
