PoTs / vasovagal syncope causing extreme fatigue and concentration issues.
Kylie236 days ago
I was diagnosed with PoTs almost two years ago, I was 21 at the time, after fainting regularly and suffering with chest pains, dizziness, sh...
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Do you have a heart device fitted?
RachelAdmin7 days ago
The TYRX antibacterial envelope was recently introduced to hospitals and can help prevent potentially serious surgical site infections when ...
mental health and vvs
nickitate8211 days ago
hi guys does any 1 have mental health like dissacoiative disorder as well as vvs? my son has vvs but has also been diagnosed with anxiety an...
Do you shop on Amazon?
RachelAdmin14 days ago
When you shop @AmazonSmile, Amazon will make a donation to Syncope Trust And Reflex Anoxic Seizures. smile.amazon.co.uk/ch/10848...
Psychogenic blackouts/ seizures forum
Dakota4418 days ago
i am thinking of starting a psychogenic blackout awareness forum
where people who are suffering blackouts can talk openly about there ...
8 Replies3 Likes
Psychogenic Blackouts support forum
i have a very nasty condition where i fall and pass out called psychogenic blackouts
i have been accused of putting them on , them only...
Recent diagnosis of vasgovagal syncope with my 16 yr son
Nicola198318 days ago
My son has now had 7 seizures since December. Had 2 in December 6 days apart none in Jan or Feb then 2 in March 6 days apart and 2 in April ...
RachelAdmina month ago
If you are planning to watch the London Marathon on Sunday, please keep an eye out for Saskia who is running to raise money for STARS. Her b...
irishgal2 months ago
Hi everyone I have scleroderma fibromyalgia and arthritis in my spine and hips as well as that I have been taking seizures for 2 years my n...
Sammiej07872 months ago
Hi is there anyone who can point me in the direction of a specialist near me. I live in Poole Dorset. Am now 31 and Pre Syncope 85% of the t...
Recent diagnosis of neurocardiogenic syncope
Mandapanda822 months ago
Hi all I've joined here today with the hope of getting advice from people with this condition. Following a tilt table test I got my diagnosi...
4 Replies1 Like
Has an ICM or Zio Patch diagnosed your condition?
RachelAdmin3 months ago
We are seeking people who have had an ICM (Implantable Cardiac Monitor) fitted, or a Zio Patch to seek a diagnosis.
Would you be willing to ...
Trying to figure out whats wrong
moates9473 months ago
I have heart problems, epilepsy, small vessel ischaemic disease and trying to figure out whats happening or if one of my conditions is affec...
We at STARS would just like to say we hope you are all safe and warm.
We also wanted to let you know that we are still available if you need...
HOT TOPIC 19/02/18
This weeks HOT TOPIC is holiday insurance. Have you found it difficult to obtain holiday insurance with your condition? It is always recomme...
Stoney13 months ago
Hi, just wondering if anyone has experience of severe breath holding. My 14th month old has episodes weekly, since he was 4 months old. I’m...
Today's Hot Topic 05/02/18
RachelAdmin4 months ago
Our HOT TOPIC this week is relaxation and mindfulness. Do you find that relaxation, mindfulness or meditation helps with your condition? Do ...
FND / NEAD Adolescents
Lynneporterjack4 months ago
Hi all. My 15 year old son has been diagnosed with NEAD / FND, and I was wondering if anyone is aware of any Facebook or other groups specif...
Rj934 months ago
Hi, I was diagnosed with PoTS last summer and currently taking ivabradine. Unfortunately my doctor has never heard of it and doesn’t offer a...
nickitate824 months ago
hi guys im new im just wondering if anyone has had problems with school? my sons school dont help my son and tell him to stop it wen he goes...
Today's Hot Topic 29/01/18
This week's hot topic is exercise. Do you find that exercise improves or worsens your symptoms? Are you less able to partake in exercise sin...
TODAY'S HOT TOPIC - 22/01/18
Blood pressure and pulse rate can be influenced by what we consume. These changes can be quite dramatic in a patient with syncope or PoTS.
My son has reflux anoxic seizures I was told he would grow out of them can this condition last to adulthood ?
Tsimboykas4 months ago
Thank you for any help
C0nsta4 months ago
Hi my 15 Yr old son as been diagnosed with STARS and is currently having lots of symptoms of racing heart and pulse, I dizzy spells and blur...
2 Replies1 Like
Struggling with PoTS
aca53214 months ago
This week has been the worst since being diagnosed is summer 2015. I have a headache that won’t go away, dizziness lying in bed, turning in ...
Today's HOT TOPIC - 15/01/18
Todays Hot Topic: NEW YEAR: NEW YOU – Don’t let your condition kick your resolutions!
As a patient or carer what are some of your new years r...
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We want the forum to be an welcoming place for you to all come to ask questions and share information so we would ask for everyone to read a...
Beginning next week, we will start a new Hot Topic each week. Each Monday, we will post a new topic. If you have any questions on this topic...
EmilyCJ5 months ago
Does this sound like POTs?
I presented with insomnia, palpitations, increased sweating (nighttime is worst), and anxiety.
Doctor did ECG - a...
Daughter faints with loud music
Kattturner5 months ago
Hi I’m new to the group and want to know if anyone has any ideas. My daughter is 9 and for over a year has fainted or gone dizzy with ringin...
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