Evaenels5 days ago
Hello! My daughter of 15 is diagnosed with vasovagal syncope since march this year. She fainted almost twice a day, mainly at school or afte...
Continuous homebased EKG monitoring results in a significantly higher rate of AF diagnosis
Sharonica-Admin6 days ago
The mHealth Screening To Prevent Strokes (mSToPS) randomised clinical trial showed that home-based wearable electrocardiogram (EKG) sensor p...
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STARS 25th Anniversary Newsletter
Sharonica-Admin9 days ago
This is how it all began...
Celebrate our 25th anniversary with us, with personal essays from STARS founder and CEO Trudie, as well as her da...
Flying and Sezuires
WilsonRRa month ago
Hi everyone! Just wondering if any of you have any advice on having RAS and flying; i recently had a faint then seizure mid-flight (not the ...
Jacbara month ago
I’ve just joined and wanted to say hi.
Looking for advice on getting diagnosed with PoTs. I live in Scotland.
Pots.uk have Dr Meh...
Mobile Technology to Activate Citizens and First Responders to Improve Sudden Cardiac Arrest Survival Rates
Sharonica-Admina month ago
The International Association of Fire Chiefs (IAFC) supports the use of mobile technology for citizen response in conjunction with community...
joyce21248a month ago
can anyone with thyroid disorders tell me if they find they have to sleep all day
STARS-US chats with Cleveland Clinic Cardiologists and Electrophysiologist
Sharonica-Admin2 months ago
Today June 5th, in recognition of World Heart Rhythm Week (June 4th-8th) STARS-US will be conducting a chat with Cleveland Clinic physician...
We need you!!!
Charleneadmin2 months ago
Please help us to spread the word and raise awareness during this Arrhythmia Alliance World Heart Rhythm Week! Sign up to our Thunderclap ca...
I'm new on here. Any other adults out there with reflex anoxic seizures?
gingergremlin2 months ago
Are there any support groups out there specifically for adults with reflex anoxic seizures? I'm struggling to find anyone who has had simila...
STARS offers FREE CPR/AED Training
Are you interested in FREE CPR/AED training?
STARS in the United States is hosting a FREE CPR/AED course on June 7, 2018 from 9am-12pm at the...
PoTs / vasovagal syncope causing extreme fatigue and concentration issues.
Kylie232 months ago
I was diagnosed with PoTs almost two years ago, I was 21 at the time, after fainting regularly and suffering with chest pains, dizziness, sh...
Do you have a heart device fitted?
RachelAdmin2 months ago
The TYRX antibacterial envelope was recently introduced to hospitals and can help prevent potentially serious surgical site infections when ...
mental health and vvs
nickitate822 months ago
hi guys does any 1 have mental health like dissacoiative disorder as well as vvs? my son has vvs but has also been diagnosed with anxiety an...
Do you shop on Amazon?
When you shop @AmazonSmile, Amazon will make a donation to Syncope Trust And Reflex Anoxic Seizures. smile.amazon.co.uk/ch/10848...
Psychogenic blackouts/ seizures forum
Dakota443 months ago
i am thinking of starting a psychogenic blackout awareness forum
where people who are suffering blackouts can talk openly about there ...
11 Replies3 Likes
Psychogenic Blackouts support forum
i have a very nasty condition where i fall and pass out called psychogenic blackouts
i have been accused of putting them on , them only...
Recent diagnosis of vasgovagal syncope with my 16 yr son
Nicola19833 months ago
My son has now had 7 seizures since December. Had 2 in December 6 days apart none in Jan or Feb then 2 in March 6 days apart and 2 in April ...
RachelAdmin3 months ago
If you are planning to watch the London Marathon on Sunday, please keep an eye out for Saskia who is running to raise money for STARS. Her b...
irishgal4 months ago
Hi everyone I have scleroderma fibromyalgia and arthritis in my spine and hips as well as that I have been taking seizures for 2 years my n...
Sammiej07874 months ago
Hi is there anyone who can point me in the direction of a specialist near me. I live in Poole Dorset. Am now 31 and Pre Syncope 85% of the t...
Recent diagnosis of neurocardiogenic syncope
Mandapanda825 months ago
Hi all I've joined here today with the hope of getting advice from people with this condition. Following a tilt table test I got my diagnosi...
5 Replies1 Like
Has an ICM or Zio Patch diagnosed your condition?
RachelAdmin5 months ago
We are seeking people who have had an ICM (Implantable Cardiac Monitor) fitted, or a Zio Patch to seek a diagnosis.
Would you be willing to ...
Trying to figure out whats wrong
moates9475 months ago
I have heart problems, epilepsy, small vessel ischaemic disease and trying to figure out whats happening or if one of my conditions is affec...
We at STARS would just like to say we hope you are all safe and warm.
We also wanted to let you know that we are still available if you need...
HOT TOPIC 19/02/18
This weeks HOT TOPIC is holiday insurance. Have you found it difficult to obtain holiday insurance with your condition? It is always recomme...
Stoney15 months ago
Hi, just wondering if anyone has experience of severe breath holding. My 14th month old has episodes weekly, since he was 4 months old. I’m...
Today's Hot Topic 05/02/18
RachelAdmin6 months ago
Our HOT TOPIC this week is relaxation and mindfulness. Do you find that relaxation, mindfulness or meditation helps with your condition? Do ...
FND / NEAD Adolescents
Lynneporterjack6 months ago
Hi all. My 15 year old son has been diagnosed with NEAD / FND, and I was wondering if anyone is aware of any Facebook or other groups specif...
Rj936 months ago
Hi, I was diagnosed with PoTS last summer and currently taking ivabradine. Unfortunately my doctor has never heard of it and doesn’t offer a...
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