Hope at last

[Shipston3]

I have been prescribed a drug called Mestinon, after three weeks can honestly say it's changed my life, has anyone else been prescribed it? I have dysautonomia, EDS 111, I live in the north of Scotland.

[missdizzy2015]

I have EDS and dysautonomia among others, and have read that Mestinon can be a very successful treatment for these conditions. Very interesting to read that this has given you a new life.

Can you describe in wich ways it has helped you? Do you have less pain in the body overall? More strength? Better motility in the gastric system?

[Shipston3 in reply to missdizzy2015]

Yes I also have dysautonomia plus EDS111. I have been on Mestinon for about six weeks now, my faints have been reduced from virtually every day to maybe one a week when the drug wears off. I have had to cut it back to 30mgs twice a day, 8am, 12pm. I was getting severe muscle cramps which can be a side effect., however the benefits are great, more energy. I can stand and talk to people plus my stamina has improved I can walk further with much less exhaustion. My brain fog has improved plus and its a huge plus my coat hanger pain goes while the drug is working. I so wish I had known about this drug 8 years ago my life would have been so much easier. I'm waiting for blood test results to see why the bad muscle cramps are happening. What surprises me is that more people are not prescribed this drug but I well know every one is different and reacts in different ways to medication. My gut seems better on it, less hold ups! It is so good to hear from someone else using Mestinon!