Have a son whos developed Psychogenic blackouts as a... - STARS

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Have a son whos developed Psychogenic blackouts as a result of bullying at school. Id welcome a share of information

OrdessaSteve profile image
8 Replies

Our son was bullied at school and as a result developed this. 2 months of hard work with us and CAHMS helped but on the relapse we've been left to fend for ourselves for 8 weeks plus and all the time pressured by a school. Support seems fragmented and the GP is pretty powerless..

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OrdessaSteve profile image
OrdessaSteve
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8 Replies
SyncopeTrust-STARS profile image
SyncopeTrust-STARS

I can totally understand your concern and you must insist on a re-referral to CAHMS as your son appears to need further support. Regarding the bullying, this is something that school must address and your GP could also be involved. If you would like a copy of our psychogenic blackout booklet or further guidance please email info@stars.org.uk

Jenni

OrdessaSteve profile image
OrdessaSteve in reply to SyncopeTrust-STARS

Hi Jenni...I have one of these and have sought a re-referral.. just so slow to get to see people.. but thankyou

Westie-love profile image
Westie-love

I know how you feel about things moving slowly , I have urgent referrals in to hospital for my daughter but consultants don't seem to think it is urgent, we are lucky that her school are brilliant ( still don't know what causes her blackouts ) even though she can have several a day. School really need to take action in dealing with your sons situation, as this would go a long way to helping, hope things get sorted quickly x

Rachelldicker profile image
Rachelldicker in reply to Westie-love

Hi my daughter has also started with psychogenic blackouts and has several a day. Until now School have refused to have her in incase she hurts herself. They have just allowed her back but are unsure how to deal with it in school. Have you any suggestions on what worked for your daughters. So worried she is going to do some lasting CAHMS have sent through an appointment but not until March. Feeling very unsupported. Did your daughter have any treatment? And did it work? My daughter has had over 60 faints in the last 2 months. She hasn't had any at home only school and 4 at church. She hasn't any idea over what is causing them. I would be grateful for any information. Many thanks.

Westie-love profile image
Westie-love in reply to Rachelldicker

My daughters consultant phoned and wrote to the school, they still tried to send her home, be firm with school, I refused to go and pick up, one day. This made them take notice of what I was saying, CAHMS were great with her but she only got around six sessions, as she then turned 18, after she left school I was told she should have had a care plan, push for this as they have to follow it, also for exams, push for separate room with 1-1 and extra time. Hope this helps . My daughter is on Citalepram, but it does nothing, CBT might help, I am going to ask her consultant about that when we see him this week.

tashpricey profile image
tashpricey

My daughter has POTS, Neurally mediated syncopr and also has sleep attacks that are currently being labelled non epileptic seizures. I would welcome chatting about these xx

Isabel1999 profile image
Isabel1999

Hi- my first thought is- has the school helped with the original problem- the bullying? Does your son now feel safe going to school? Can you and your son think about what might have triggered the relaps? I know access to services can be difficults- can he access CAMHs again? Can he use skills he learned with them?

will check in with you again -

LaurenMiller profile image
LaurenMiller

How is your son now? Have things improved?

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