New diagnosis.

[newbe]

Hello, I have just been diagnosed with scleroderma after suffering from raynauds for 17 years. What a relief to find a forum where you can share your problems. I will, I am sure find it a lifeline. Still waiting for various tests so I will log in and read more and perhaps have a few questions.

[zenabb]

Welcome! Awaiting your questions.

[newbe]

Thanks, I'm sure I will have a few questions.

[graygirl1]

Welcome newbe. This is a great forum. I found it a short while ago and I have learnt much. I have also had the opportunity to share a few little ideas with others. It is hard to explain to non-sufferers about this very complex condition and the effects it has on our lives, so finding others who can relate to this is wonderful. It is also good to know that we are not alone in this boat but I'm sorry that some folks suffer a great deal more than I. welcome once again, you will love the forum and even have a smile at some of the comments. Best wishes for more comfortable times ahead.

[newbe]

Thank you for your comments it helps enormously. My biggest fear is not knowing how bad my scrleroderma is as I have always been told I just have raynauds!! Still got to stay positive and take one step at a time. Thank goodness for this forum.

[living-the-dream-ssc-ray]

Hey newbe!

I am on year 16 of the living the dream with raynauds and scleroderma journey ! Scleroderma is at it most aggressive the first 5 years so it is important you get the correct medical expertise and support ! Prof Denton and his team at The Royal Free in London are in my view, the experts, so I would recommend you go and see them.

Also - Have you checked out the Raynauds and Scleroderma Association's website raynauds.org.uk ? as there is some great info on there as well as they have a facebook page. Sending you best wishes on your health journey

[newbe]

Hello living the dream

Thanks for the advice it means so much to feel supported and not alone on this journey.

I will look at the raynauds site every bit of info helps. Hope you are keeping well.