Hello, is anybody happy to fill in a ... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Hello, is anybody happy to fill in a short questionnaire about their experience with Raynaud's please?

Viola25 profile image
29 Replies

Hello, I am a Graphic Design student currently in the final year of my degree. I have mild Raynaud's and I am working on a project to help raise awareness of the condition.

Is anybody happy to fill in a short questionnaire about their experience with Raynaud's?

Please find the link below, thank you.

Viola

surveymonkey.com/s/XZZVY9Q

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Viola25 profile image
Viola25
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29 Replies

All done :)

Viola25 profile image
Viola25 in reply to

Thank you very much that's great! :)

Kuhu profile image
Kuhu

Done as well...

Gillg profile image
Gillg

All done good luck x

Daisy23 profile image
Daisy23

Done :)

flickchick777 profile image
flickchick777

Thanks for the survey...Hope my responses help! =)

AliW profile image
AliW

All done - but youdon't say wheyther you mean primary or secondary raynauds ? or both ?

Viola25 profile image
Viola25 in reply to AliW

Thank you for taking part! Sorry for not clarifying, I mean both primary and secondary.

Viola25 profile image
Viola25

Big thank you to everyone who has taken part so far :), your answers are really helpful.

nanadx20 profile image
nanadx20

DoNe...what is your project? how will it bring more awareness?~debi~

Viola25 profile image
Viola25 in reply to nanadx20

Hello, thank you so much for taking part.

I'm still in the researching stage, so I am not yet certain what form the project will take just yet. I am hoping to create a campaign. Once I have a better idea of my final outcome I will put something up on here. Thanks :)

JayEmJee profile image
JayEmJee

Done.

smiler2012 profile image
smiler2012

Hope this helps.

Spot270 profile image
Spot270

Done too. As I've never been to a GP to have it confirmed that I am a sufferer. Is it something I should do? And what's the difference between the primary and secondary conditions. I do suffer quite severely with it. And doesnt take a bug drop In temp to have an attack. Many thanks.

0411tm profile image
0411tm in reply to Spot270

Spot270. I would suggest that you do visit your GP and ask to have a blood test to confirm that you do have this and also if there is any other underlying conditions associated with it. Your GP can also advise you of any medication that will help you to cope with the condition. Good luck.

Spot270 profile image
Spot270 in reply to 0411tm

Hi. I've recently been diagnosed with haemochromatosis and had more blood tests and venesections than I can bear. My point is is there any benefit from a diagnosis. Can this condition be improved? I've lived with it all my life it's just how it is for me.

0411tm profile image
0411tm in reply to Spot270

Raynaud's cannot be cured or improved, but with help you can prevent it deteriorating quicker

Spot270 profile image
Spot270 in reply to 0411tm

Deteriorating!! What do you mean? I can/will get worse?

Blue-Bunny profile image
Blue-Bunny in reply to Spot270

Haha...hahaha...mwahaha. ...couldn't resist. For most people it won't get worse really. Sure you'll get colder hands and feet perhaps but it shouldn't deteriorate that quickly. (Well unless you're me but I'm a bit weird).

It's possible but unlikely to get worse is what I'm trying to say. If you've lived with it for years and haven't noticed much of a change then you should be fine. You can take Nifedipene to stave off some of the symptoms (take a look into Ginkgo Biloba and thing about making cups of tea with it if you don't want the prescription).

Blue-Bunny profile image
Blue-Bunny in reply to 0411tm

O.o uhm... while there can be some markers, there's generally not a blood test to check for Raynaud's Syndrome. (Mine came back all clear for example yet I'm still hear, dictating with numb hands).

0411tm profile image
0411tm

Survey completed. Thank you for taking the time to create this. I wish you well. Keep us all updated of what happens.

Viola25 profile image
Viola25 in reply to 0411tm

Thank you for taking part and yes I will keep you updated with the project :).

creditcrunchie profile image
creditcrunchie

I have just completed your questionnaire but find it hard to believe a student can finance a survey via a specialist on line market research agency such as Survey Monkey.

Viola25 profile image
Viola25 in reply to creditcrunchie

Thank you for taking the time to fill in the survey.

I am a student and anyone can use Survey Monkey for free with its most basic questionnaire settings, it only costs money if you want to upgrade your account.

Thanks again.

MikefromsouthNZ profile image
MikefromsouthNZ

All completed.. Thanks for this survey and I hope it may help Raynaud's patients in the near future.. All the best and I hope your project is very successful..

It would be awesome to see your feedback/result if at all possible..?

alwaysfreezing profile image
alwaysfreezing

done

Lil_Dee profile image
Lil_Dee

Done - good luck trying to make sense of all our different issues/ideas on this !!

rosemaryr profile image
rosemaryr

Done x

Viola25 profile image
Viola25

Thank you :) x

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