rheumatologist: well glad to say... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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rheumatologist

sandycharlie profile image
13 Replies

well glad to say finally got my appointment through to see the rheumatologist at the hospital....only got to wait till june...but hay ho at least i got one...i wanted to go to my local hospital but got go one further away but it not to far, was just thinking would be the local one as can walk there but nope have to drive there haha keep arm everyone..xxx

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sandycharlie profile image
sandycharlie
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13 Replies

Nice one, I had to wait 11 months a very long waiting list I was told. :)

sandycharlie profile image
sandycharlie in reply to

i was bit surprised was in june did think would be longer wait..well happy x

AliW profile image
AliW

THta's great news - taske a list of questions you may have - if you are anything like me when I am there I forget the things I wanted to ask - & remember on the way home ! xx

sandycharlie profile image
sandycharlie in reply toAliW

yep will do good advise..x

sandycharlie profile image
sandycharlie in reply tosandycharlie

oh i also took some photos on my phone to show him how my hands go..white..to purple x

tall-tim profile image
tall-tim

It took me over a year to see a rheumatologist in Norwich. The first appointment was cancelled, then the second, then the third, until I finally lost my patience (!) and threatened them with an official complaint and then magically an appointment appeared which wasn't cancelled. When I met the consultant he said he thought the delay was unacceptable, and said he did not know about the series of cancellations. I don't want to unsettle your expectations, but if you get a cancellation I would write straightaway and complain directly to the consultant concerned listing the reasons why it is important for you to have an early appointment. Don't take no for an answer. If you don't drive your care programme yourself nobody will...

sandycharlie profile image
sandycharlie in reply totall-tim

sorry you had problems...hope mines ok..x

in reply totall-tim

Yes totally agree, I had Pain Clinic appointments - they cancelled three times. Complain - it sounds awful but make a nuisance of yourself. There again we may all be jumping the gun, your appointment may be a smooth ride, we all live in different areas/counties etc.

graygirl1 profile image
graygirl1

Hi sandycharlie. i was wondering how you are. Good to know you've been given an appointment to see your Rheumatologist. June will soon be here but just a little tip, let the department know that if there's a cancellation you will be happy to accept an earlier appointment if possible. If things get worse, which I hope will not be the case, let your GP know. The waiting lists at the hospitals do seem to be quite lenghty. Fingers crossed for you. All the best.

sandycharlie profile image
sandycharlie in reply tograygirl1

hi i bin not to bad thanks...think it helps the weather bit better...hope you are ok and keeping warm..x

sandycharlie profile image
sandycharlie

hi all an thanks for your replies, am really glad got an appointment....will definitely be taking a list of questions i to always forget an remember on way home what question i wanted to know...haha i am have been not to bad this past few days with the weather warming up a bit...take care an keep warm everyone xx

AliW profile image
AliW

Definitely take photos on your phone ....really good idea - if you are like me after sitting in a hot waiting room for an hour my fingers are pink & no sign of raynauds !! Good luck & do let us know how you get on :) xxx

tinaparkii profile image
tinaparkii

IV always from day 1 took photos on my phone. Be4 I even heard of raynauds. To show just how they ad gone. As I say id never heard of it. This was only Feb 12. Hope every one keeping well. And warm.

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