Hey, my name is Cherelle and i am 16. I am from Scotland, but do not know if there are any support groups nearby. I know no-one with this disease and i feel like i cant talk to anybody truthfully about it. I would love if anyone had any ideas or details about if they know about any of these support groups???
Thanks.x
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Cherelle16
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Hi Cherelle. If you would like more information and support about scleroderma, the RSA can help. Have you been on our website? scleroderma.org.uk
We do not have any specific support groups in Scotland but we do have local contacts in the area for members who can lend an ear. If you would like a free information pack, send your postal address to info@raynauds.org.uk.
Tell us: have you been diagnosed with scleroderma? Do you have a consultant rheumatologist? Are you receiving any treatment? Do you have a apecialist nurse? Talk to us about your symptoms.
I suggest that you contact the RSA (The Renaud's and Scleroderma Association) for official information.
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