does any one suuffer sweating as well... - Scleroderma & Ray...
does any one suuffer sweating as well as the cold etc
i do even more so since my hysterectomy operation
YES!!!, I was just talking to my hospice nurse about this very situation. When I'm in alot of pain my body sweats. Even if my lower half is cold and it's cold outside, I'll have the A/C on 'cause I'll be sweating. She tells me, you must control the pain issue and then let your body try to heal whats going on! The body can only cope with 1 thing at a time...so give it some help. Control your pain as much as you can, use a fan if necessary, but keep your hands and feet warm too
thanx for reply i have electric fans in every room iat home it helps but dont know how the bills will be paid lol least off my worries .how come you got to hospice with raynauds ?
I have been diagnosed with systemic scleraderma for 14 years. This is the second time I've needed hospice. The first I had just been diagnosed. I was on hospice within months and dying (1997)...I got off in 2003 went into remission, but after two surgeries went back on. Surgery re-activates the disease, starts it up all over again. But this time they are working to keep me eating, and changing all the meds, took me off 80% of them. No more vomiting, nausea, heartburn, reflux...the usual symptoms. Ps. Raynauds was what I discovered I had before I diagnosed myself with scleraderma!
ah marcy poor you ,hope they sort you out soon so you can feel better
Oh, I'm doing well, Hospice really isn't a "dying persons help" anymore. They control all the uncontrolable issues the doctors can't or won't control because of all the paperwork. Plus Dr's have their liscenses checked often when their patients have large doses of narcotics. This is why I chose to get back on hospice, they thought out of the box and now, I can eat again, sleep, just have real good days! It was 5 yrs of nausea & vomiting everyday. I had lost a good 30+ pounds in 6 mths, cause I couldn't keep any nourshiment down, even to throw it back up!
Try to get someone to regularly massage lotion into your limbs. It's very important to keep your circulation working and it will help with the being hot in one location and cold in another.
thanx for advice very helpfull .pleased to hear you have made progress ,after being so ill
Yes - I do. One of the early blogs I put on asked about this. My view is that people with our various conditions have bodies that tend to react to the extreme. In the cold our hands and feet etc tend to "shut down" leading to an attack. In the same way I find that when I get warm and particularly when I am training in the gym that I sweat a lot and get wet-through. I have to change mid-session into a dry t-shirt so that I do not get too cold. I think the wiring on us must have gone haywire!!
thanx for reply im the same think my thermostates gone .off to neurology today as haveing twitch and involentary movement and cramps .see him for epileosy anyway .give you update later
I hope you get on ok.
well was a waste of time got there doc was 90mins behind time .when i was telling him my update he was dictateind it to the rhumertologist at another hospital .just said see you in 3 months your probs are all raynauds phenomena related .did that mean the twitching or the sweats grrr .pi..... off .and done in now so tired
I can also relate to this ! My hands and feet are freezing stone cold so I layer up and my armpits are off on their own frolic! Consequently I am very conscious that I smell like a pole cats grandma! Im soooo envious that you can go to the gym Emma2 ! and I hope that you come back with some good news to tell us about on here Suzie! and Marcy - my prayers go out to you also 
Yes, thank you for your prayers, and good job Emma, keep as active as you can, don't stop until you drop!
dont have energy at the moment to do much .there is knew pool oppening going to see what classes are available
If you can excersise, do it! Don't stop being active until you can no longer comply! I think my working out so frequetly was what kept me from dying when I was first put on hospice and completely contracted! Stay as active as you can. You may not get scleraderma, but if you do...you will appreciate the flexibibility you have until you received the diagnosis.
didnt come back any wiser should have stayed home hrs just dictated across to the rhumertologist .it was neurologist i saw today he said my probs are related to the raynauds .i have hadd bad eye pains the last week been crying was so bad and pains shooting through my knee and ankles grr what next
Not all Rheumotologists are proficeint in autoimmune diseases, your may be better at RA. Find one who specilizes in Raynauds & Scleraderma or the other illinesses that attach theirselves to this disorder. Research online autoimmune diseases and their symptoms. You may have something he hasn't yet diagnosed and could be fixed easily.
ok thanx for help.whats RA?
Rheumotoid Arthritis, thats what most RA docs specilize in, although they know about the other disorders, unless they specialize in your paticularly, your might not be getting the best possible help. Ask him and if he doesn't , ask for a referral.1-800-doctors might be able to help you as well.
ok thanks for advice
omg, yes!! My Raynaud's is severe enough, but I also have hyperhydrosis. My hands and especially my feet get extremely sweaty all summer. In this colder weather, it seems like my hands and feet overcompensate by sweating as they get the slightest bit warmer 
my whole body is bright red and im dripping .isnt it vile ?
whats hyperthydrosis ? i,m glad to be able to chat on hearthanx for reply take care
Hyperhydrosis is excessive sweating. I have a RX to use on my feet in the warmer months,which mildly helps; there doesn't seem to be a happy medium in the cold months. Sometimes when I'm out somewhere, it'll be a tad too warm for me, and my face feels like it's on fire!
oh thats what im like a cherry ,do you take meds for it ?
I too had severe sweating my skin would turn red like I had sunburn and was hot to touch.They just recently diagnosed me with Erythromelagia.It also hurt to touch my skin.It too goes along with Raynauds.I thought I was going nuts they kept telling me it was hot flashes I knew it wasn't.
this is me aswell im 57 they put some off it down to the change .i have to keep comeing out off shops and off the bus im on fire
I was born with Raynauds, and hyperhidrosis, the treatment in South Africa, was surgery, to sever the sympathetic nerves. My feet miraculously became warm, and the hyperhidrosis stopped!!...Extreme, maybe, 2 major surgeries in 2 years,the second for my hands, but i have warm, pink, dry extremities.The only negative is now being extremely dry, so use barrels of moisturiser, but so worth it.
poor you to have sufferd all your life .didnt know there was surgery for this .thanx for reply im learning more from this site than from the docs
Hmmm...I just thought I was having hot flashes.
me too wish that was all it was
Yes, I find my body can be too hot while my extremities are very cold and showing Raynauds
I have noticed that when my hands or feet start to get an attack they do start to get rather clammy. I thought it was just the room temperature playing with my skin, however, no one else in my house ever gets this problem.
This makes things a little worse as when they get clammy, they start to get colder again. I suppose that this works the same way as when you are too hot and perspire to cool down, except I'm already freezing cold and just get colder again.
Yes, I have often found this which is a real pain as I am a dancer!
that must be a big problem for you .im fed up of switccing heating on and off .and have to keep getting off bus as im bright red sweating ,but hae to wrap up as its freezing .also left my shopping trolly in asda the other day just had to get out of store asap
Nuts but true I have both. The best is 49 and menopause is not helping. I take 2/3 showers a day. but yet my hands can't be in cold because of Raynauds, for the ulcers and cracks I get from it I need cold????????
wish i could find a comfortable temp ,im freezing or sweating feel worn out with it all .ended up in tears a few times last week pain so bad in mt feet and hands now there itching like made .hope in not getting ulcers now grrr
definitely! xxx
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