attack: just had first proper raynards... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,844 members5,412 posts

attack

moss profile image
moss
5 Replies

just had first proper raynards attack of this season. the chillblains will follow soon-i get them ever years now yet my raynards is secondardart. any advice please . i had forgotten how yuck it is. tried medication but makes me dizzy

Written by
moss profile image
moss
To view profiles and participate in discussions please or .
5 Replies
daniella profile image
daniella

I also can't take medication for Raynauds due to severe side effects. You could go down the natural route by taking ginger root capsules 2000mg - 4000mg daily, GLA which is found in starflower and omega 3 fish oils, 320mg daily and Gingko Biloba up to 240mg daily. This is what I was advised at the Royal Free Hospital to take. It is quite an expensive treatment though, but is certainly beneficial, you will have to check with your doctor first though . I hope this helps. Good luck and stay warm for the winter.

I know the feeling, I am constantly in pain, but last Friday was particularly bad. Dreading the cold weather. Medication from the Pain Clinic made me very ill. Went back yesterday and now prescribed Codeine Phosphate 30mg. Will have to see how that affects me. :(

Jensue profile image
Jensue

My raynauds is secondary to Scleroderma & I have tried also sorts of medication but the one that does help is Liquid Prozac, one of its side effects is to open up blood vessels. My consultant told me to try it after having Iloprost & that not really working for me. My fingertips are already painful & are beginning to blister so its not a good start for the winter.

moss profile image
moss

Iloprost ????? what s that

MartinGavin profile image
MartinGavin

have you tried "NIFEDIPINE?

You may also like...

Does anyone have itching and burning attacks?

really not that dry. I always try to keep my skin very moisturize.The attacks can last for couple...

Red itchy lumps and blisters following an attack

Raynaud's a few years ago (the GP agrees but hasn't run any tests) but it's been getting worse and...

Panic attacks & Raynauds

an attack, putting me in a bad place for the cycle. My question is whether having panic attacks...

Does anyone get spasmodic dysphonia with Raynaud's attacks?

I have these each time I have some sort of attack. I'll kinda zone out, my legs will go cold and...

Can anyone recommend a way to warm my hands up when I get an attack?

I've tried keeping my hand under runnig warm water but they just get cold again. I've tried wearing...