I just want air!!: Ok, I am glad it is... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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I just want air!!

uknlv profile image
6 Replies

Ok, I am glad it is warm and I am enjoying the sunshine, well as long as it has lasted!! But dang I am having a terrible time breathing. I feel like someone is sitting on my chest. I have to stop and take a deep breathe every 10 mins or so or I get so dizzy I fall over! Anyone else have more trouble breathing in the warm weather? And I seem to keep getting a weird nagging cough???

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uknlv profile image
uknlv
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6 Replies
foxglove profile image
foxglove

Hi ukniv,

Fortunately dont have troublle breathing and like most folks with raynauds do love the heat, specially when it's overcast as the sun affects my skin - I also have discoid lupus To answer your Q re cough I find pholcodine linctus helps tremendously Available O.T.C.

JaneP profile image
JaneP

Like you, I am glad of the warm weather but my breathing is very laboured and at times I do have difficulty getting my breath even when I haven't been doing anything. We aren't allowed to open the windows at work and have no ventilation and I don't think that is helping my breathing at all, and feel so tired all the time. I can't sleep at night for coughing and have put this down to the dry air.

RosemerryVenet profile image
RosemerryVenet

Don't have a cough problem, but air conditioning is a killer!

zenabb profile image
zenabb

Are you on niphedipine? I am, and a doctor in the U.S. told me that in the summer the heat dilates the blood vessels + the niphedipine it gets to be too much. He said that I could reduce it a little but it can be dangerous and I have to return to my normal dose if my Raynaud gets worse.

I have a cough which is worse at night because of my reflux which irritates my throat. My doctor gave me two inhalers and there is much improvement. My chest is O.K.

suzierwp330 profile image
suzierwp330 in reply to zenabb

im getting probs at night with feeling something in my throat wakeing me up ,have shortness of breath walking .have inhaler for that .also have noticed when i have eaten im burping almost immediately .feels weird in my chest like my food hasnt gone down .

GinaAnn profile image
GinaAnn

Yes, I have trouble getting enough air and of late, stumble quite a bit for no reason. I am scheduled for tests for EKG and whatever else he does at St. Thomas in Nashville. Can you tell me what to expect?

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