Hi my son is 3 years old ans has just been diagnosed with primary raynauds. Are we able to claim dla for him?

[stix1980]

[Hidden]

To be honest i very much doubt it. I,ve just scraped the low end of DLA and thats with Scleroderma, autoimmune liver probs and hypothyroidism. I,ve never known anyone with primary raynauds get it. However, having said that, its always worth giving it a go, you never know unless you try!

[SandraMarie]

I can't see why anyone should get DLA for Raynauds alone.Unpleasant as it is, it doesn't exactly hinder your abilty to exist. The only way to deal with it is the obvious, keep hands and feet warm with gloves and socks.Most of all don't allow it to become the sole focus of your existance.Just treat it as you would anything.A bit of common sense. If you're cold you put warm clothes on, if you're hot you don't.Hot-water bottles are always a good idea. x

[Motherbeastly]

I put an answer on for AskMum which basically agrees totally with SandraMarie. Raynauds can make them cry but it doesn't have to stop them doing anything. Why would you want to have DLA for a small person who doesn't really need it? You would make them feel like an invalid.

Good gloves and woolly socks and, when I said about these two posts to my daughter, she said she couldn't stress the value of hand warmers. Good luck with it because it does make them miserable but they do learn to cope, as will you. Don't ignore it if they are feeling miserable but keep cheerful, 'we'll soon warm you up' is a good line. Mugs of soup or hot chocolate to cuddle help and try not to warm their hands or feet too fast, that's more painful than anything. Good luck with it xxx

[stix1980]

Its not that in winter he is in so much pain that he has difficulty walking even with 4 pairs of socks. He refuses to eat ice lollies because they hurt his hands even if I put a flannel or towel on it and more often than not he wakes up screaming at night that his feet hurt and he cant walk. The hospital have ruled out arthritis but apart from keeping him which we do it is affecting his life. If the weather is damp and he does what all kids do jump in puddles he screams in pain afterwards and cant walk. I understand what everyone is saying but if it wasn't affecting him so much I wouldn't even be considering it. xxx

[Hidden]

Its very hard to get DLA, esp with the current cutbacks. On the form itself they state that you have to be 100% blind (cant be 80%)!!! or have to be amputated below the knee (not both feet)!! Its probably a case of him learning to deal with it in the best way possible, and getting his autoimmune profile done with his GP occasionally to check that he isnt developing something else.

[rosie_girl]

I know how much pain I feel, but as an adult I can understand why, but ure poor little boy must b in pain & not understand why. I sometimes find that too many pairs of socks can be just as bad, have u tried a good quality camping & hiking shop, as some of those socks can work, the marino sheep wool r best, but they r expensive. I would also go back to ure doctors, as they mayb able to refer him to a specialist, after all that is why these docs spend years training in one field, so they are experts.