Hi ! Has anyone been taking or taken ... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Hi ! Has anyone been taking or taken Bosentan for secondary Raynaud's and did it give you nose bleeds ? thanks !

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cookie74 profile image
cookie74

hi,, ive been on them for 4 year n never had a nose bleed,, x

Ah thanks for taking the time to reply cookie ! and also that you have been taking them for 4 years - do you take them continuously throughout the year ? I am on my second 6 month dose and I had to wait months for the funding to be granted ! :) x

Hanosity profile image
Hanosity

I have been on Bosentan for three years and no nosebleeds so far..

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