Feet reacting to heat but not cold - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Feet reacting to heat but not cold

ES26 profile image
ES26
2 Replies

I have had Reynaud's in my hands for years and which I manage. Since having Covid and 'Covid toes' I have been left with feet that react badly (redness, itching, and discomfort) to heat (exposure to sun, hot showers/baths/walking in boots in bad weather) and also sometimes to the touch of fabric (bed linen or the hem of trousers). I have had tests for autoimmune disease which are negative. I am also waiting for nerve tests. My GP and a rheumatology consultant have suggested this reaction could also be Reynaud's which I don't understand at all since my feet react to heat and not cold. Has anyone else come across this please?

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ES26
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OldTed60 profile image
OldTed60

It sounds very much like Erythromelalgia from what you describe. Some rheumatologists lump this rare condition in with Raynauds but it’s more likely a cutaneous display of neuropathy - although they can overlap. I have both, secondary to systemic sclerosis and other autoimmune diseases and allergies. Here’s a link that may help you start researching what’s causing yours I hope: sruk.co.uk/scleroderma/eryt....

ES26 profile image
ES26 in reply to OldTed60

Thank you OldTed60. I'm sorry you have the conditions you list but grateful you have given me much-needed information.

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