Hi, Just wondered if anyone has been under the care of consultant Ariane Herrick in Manchester for SSc and wouldn’t mind sharing your experience of her as a consultant. Many thanks in advance.
Ariane Herrick: Hi, Just wondered if... - Scleroderma & Ray...
Ariane Herrick
Hello EdenMy partner is under Prof Herricks care. I’ve found that she is good but doesn’t always explain things. Her team are excellent and very caring. I feel that appointments can sometimes feel a bit rushed, but think that’s more the volume of work than anything. I would be interested to hear of other experiences too.
I have never seen her as I’m in Birmingham but she is very well regarded as a Scleroderma specialist and have heard her at conference.
Hi,I have been under Prof Herrick since July 2017, basically she saved my life! I was diagnosed with acute Diffuse Systemic Sclerosis in 2017 which progressed aggressively.
I would totally place my trust in her & her team.
I always went armed with a list of questions whilst my sister wrote the answers down.
She is very empathetic & did her job to the utmost degree even when an answer to a question I posed was quite a shock to me.
As with this disease, we vary so much so wait times can be delayed. I found I was never rushed whilst she explained the intricacies of this awful disease.
She has immense knowledge of Systemic Sclerosis (Scleroderma) & will guide you at every stage of this disease.
As mine was the worst of the worst & at an early stage no stone was left unturned to save my life.
I was extremely lucky however as the disease had not adversely affected my organs at this stage & she discussed a possible option of stem cell treatment. She gave me all the information I needed to make an informed decision.
In my case, Mycrophenolate was not stopping the fast progression & my skin score had reached 48 by November 17!
I was referred to Sheffield in January 2018 & after passing a range of tests, performed this amazing treatment in May 2018.
However it's very rare to have the disease progress so rapidly. I found out later that only 20 people in the last 20 years have had stem cell treatment for our disease in the UK.
I'm now starting to have a fairly normal life though I will never be the active adventurous person I was before this disease changed my life. It has changed my prospect of life in that I cherish each day & enjoy as much as I'm able. I accept more easily now that one day I feel great & the next day I may need to rest.
I hope my response has helped you be less worried on this journey. Trust in your team & remember to have lots of questions ready as there is so much to learn.
Xxxx
I am waiting to see her, was referred by my Consultant Rheumatologist early April. I haven't heard anything as yet. Good luck.