NHS COVID latest letter 20/12/21 - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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NHS COVID latest letter 20/12/21

Poppy221 profile image
8 Replies

Just had an email to tell me about the latest NHS advice for getting treatment if you get COVID.

The blank letter can be read here

england.nhs.uk/coronavirus/...

Thought I'd highlight in case people haven't seen it.

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Poppy221
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8 Replies
Sophiebun11 profile image
Sophiebun11

Thanks, Poppy. That was interesting. In the US we don't get notified like that. I think it's a really good idea. I know that in my state we are back to mandated masks with the new strain of Covid. I never stopped wearing a mask. In fact, I double mask. I may wear a mask the rest of my life since I now have one to match every outfit, they have become a fashion accessory. I do miss wearing earrings though, you can't really wear both.

Sanmateogirl107 profile image
Sanmateogirl107

one thing they do not say oregano oil is a very good virus killer. julie

Bkart profile image
Bkart

Thanks for posting this poppy, I was identified as ‘ high risk’ and put on the ‘Shielding List’ during the first lockdown in 2020 for a rare neurological condition, by my Neurologist. Since then I have developed symptoms for Systemic Sclerosis, awaiting possible diagnosis.

I haven’t as yet received this letter but I clicked on the link to the GOV. website which said that if you haven’t received a letter by the 22nd Jan to get in touch.

I caught Swine Flu during the last much lesser Pandemic in 2008/9, so ill with that, I was given anti-viral meds and they really helped then (of course these anti-virals for COVID are new and different).

So important to get this info., for everyone. Thank you very much.

Bkart profile image
Bkart

Hi Poppy 221 do you know who provides the health information for making the decision as to which person qualifies for the COVID antiviral treatment. I asked my GP Practice but they said they were not involved so just wondered how they arrive at their decision without trawling through millions of health records which would be totally impractical. Perhaps from the Shielding Lists. I have learnt from long experience that sometimes you fall through the cracks (floorboards), but as a councillor once said to me, sometimes you are just put there ! I now like to be proactive and not wait until I find myself down there again.

Please don’t worry if you can’t answer this, I just like to explore every avenue where the NHS is concerned and be prepared in advance. Thank you and take care.

Poppy221 profile image
Poppy221 in reply toBkart

You have to be on the clinically extremely vulnerable list, but not quite sure who puts you on that. Seemed to be central government. I'm immune suppressed and have pulmonary hypertension as a fun addition to limited systemic sclerosis.

Bkart profile image
Bkart in reply toPoppy221

Hi Poppy221Thanks for your reply, yes I am on the list but still not received a letter. I wonder if anyone else is also on the list but not had a letter sent to them. My GP has said that they are not involved in this and that it is decided by a ‘central regional team.’ So it could be arbitrary in different regions as to who decides which

person qualifies.

Thanks again for posting the info as I wouldn’t have known anything about this. I’m going to make further enquiries (I’m stubborn and don’t like to give up easily) so I’ll post if I’m successful.🤔

Keep safe and I hope you won’t ever need the anti virals.

Poppy221 profile image
Poppy221 in reply toBkart

Are you on the list with a rheumatologist? And does your hospistal rheumatology dept have a specialist nurses helpline or email that you can contact? I find mine very helpful, so that could be a place to ask questions.

Redwine53 profile image
Redwine53

Thankyou Poppy

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