Have been told autoimmune.. After being treated for Giant cell arteritis..they think SLE

[suitcase1]

I have developed tiny white spots on 2 of my knuckles and are painful if knocked does this happen with all autoimmune or specific ones ..Been trying to learn up but not sure just trying to see I also have issues with large stools ..and gut problems lungs throat and spasms on face headache tightness of skin feels stretched and pressured vascular prob BP very high to very low painful knees .Can anyone relate to this .? X

[suitcase1]

Sorry should have said problems swallowing and Raynauds of the face hands also

[Redwine53]

Hi Suitcase I think they are very small calcium deposits and I have a few over my body including face, palms and back of thumb. I keep them moisturised and after a few months I picked them out, I probably shouldn’t have done! Inside were small hard round calcium balls which haven’t returned. I am not suggesting you do this but the moisturising definitely helped and they weren’t as painful as yours. I have been diagnosed with scelerderma for over 18 months now. Good luck and see your gp if you need to,

[suitcase1 in reply to Redwine53]

Hi .Thanks for that .So I take it once you have them they don't go away unless you get them removed .I thought maybe the would dissolve and go away .But of course how can something as hard dissolve.! I am just going through the process of them diagnosing me they say lupus or family of lupus .

But having tightness in my face and scalp skin going white and definite Raynauds. Lung and brain issues .

Good luck to you and best wishes X

[Sanmateogirl107]

OK TRY WILD LETTUCE EXTRACT FOR PAIN I USE WORKS GREAT PLEASE LET ME KNOW HOW IT WORK (MT ROSE HERBS, EBAY OK. PRAZOSIN THAT CAN HELP ASK THE DOCTOR AND MAKE NOISE BE HEARD DO NOT TAKE NO FOR AN ANSWER OK. LOVE YOU GOOD LUCK LOVE JULIE

[suitcase1]

Hi Julie Thank you so much Yes my voice has been lost ..sadly .Think they thought I was hypochondriac now ..They found out in may had all this going on by blood results But was put on steriods Jan for suspect GCA long story..But was doing really well on them was back to my old self .I got an MRI 8 wks of heavy duty steroids and he said it was normal..So told me to.get off them asap as I didn't have it....which I was pleased to do but thought why such a good outcome with them .But then my dermatologist flagged it when seeing her for scalp issues .she had saw it in the bloods in may I've asked for my GP notes .Saw in black in white he knew since 5th may ..Big apologies on friday ..That means jack shit for me...Now putting me on all sorts.If they had acted then .I believe I wouldn't have been as bad now .They have said lupus like ..so just reading up but big tick list on symptoms..More bloods to see neurologist this week .So I will see his input But thank you I will get some and see .Love and hugs ,best wishes and good luck to you 💕Miriam Xx