Hi there, I'm new to this group.... 47 yr old male. living in the uk
6ish years ago my hands started going cold when surfing... sometimes blue
I was sent to cardiologist who then sent me to lupus specialist who then sent me back to my local Rheumatology dept.
My bloods were normal except for a marginally elevated ANA level. I had a nail bed capillaroscopy which was ok too. Nothing else to note so i was marked down as 'primary'. So i'm being checked out every 2 yrs re bloods
all the above took a few years .. meanwhile my feet joined in the party and my symptoms changed:
I never get blue hands , just cold fingers and toes with pale digits and 'flushed pink hands from knuckles back. This happens on any minor temp change - walking btwn rooms at home for example
I also have constant tingling in my hands and feet which is worrying me. I have taken b12 meds hoping it was that but it seems to be a little worse over time
So i'm confused if i have Raynaulds of something else.
A local private 'functional?' doctor thought my issue was body temp so put me on thyroid meds in an attempt to raise my body temp (which was 35 to 36C) ..... that felt really positive and i felt sure my symptoms improved... but only for a short while and i'm back to the same situation again
I'd really appreciate and thoughts or advice from those with more experience on this group.
Many thanks in advance