Help!

[Fizz14]

Hi,

I have been diagnosed with Pm scl 75. Is there anyone else with this? I know it’s an overlap syndrome so I have Raynaulds and Sjogrens, joint pain...

I just had an abnormal ECG.. is this a feature of this syndrome or the medication that I am on?

Due to COVID im waiting to see both a Rhem and Cardiologist. The list is long so I would be so grateful for any advise! Or recommendations of who I could see privately to help work out management of my condition.

Thanks

[Tiggywoos]

Hi Fizz

I know this is an old post but I searched for the pm and your post came up unanswered .

Did you manage to get a private appointment sorted and how are you feeling ?

I’ve got negative ana but positive pm scl 75 . It’s quite overwhelming isn’t it !

Happy if you’d rather private message as your post was unanswered . I can’t believe we’re the only ones though 🙏.

Take care