Breast lumps/calcinosis/fibrosis - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Breast lumps/calcinosis/fibrosis

kimmo profile image
7 Replies

Has anyone else discovered a lump? I spent the weekend worrying myself sick, remembering that breast cancer was one of the ones linked to scleroderma. I’ve had this condition since 1996, changing to systemic sclerosis in 2010 when I lost my colon and large intestine. My abdomen was covered by internal calcinosis and obscured the organs on CT and MRI scans. I saw my GP yesterday in a gazebo on the surgery car park, a novel experience, and she said she would make an urgent referral to the local clinic. Not much more was said as there was a queue outside, and as it was a windy day the walls of the gazebo weren’t built for privacy. I just wondered if anyone had experienced breast cancer as a result of scleroderma with the involvement of calcinosis or fibrosis? Any info would help. Take care and stay safe 🤞

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MissusTee profile image
MissusTee

I haven't, always wise to get breast lumps checked out as you are. I've had lumps in the armpits but these were just lymph nodes enlarged because of autoimmune conditions.

kimmo profile image
kimmo in reply to MissusTee

Thank you for your reply. I hope my diagnosis is the same as yours x

positivedaybyday profile image
positivedaybyday

I was sent for a breath scan by my fantastic consultant after being diagnosed with aggressive systemic sclerosis in 2017. The scan was clear for me but mid last year I found I was scratching my shoulder & it wouldn't stop being itchy. . I thought at first it was linked to ulcers on my legs as my skin tightened. In 3 months it grew to look like a small volcano & was identified as a type of skin cancer. It came as a shock as I'd had a very terrible time since 2017. Surely this wasn't happening on top of SS!! After an initial panic I told myself I had fought SS so I could do the same again.. My consultant referred me to Christie''s in Manchester & in November last year I had it surgically removed. It was an early stage cancer so get yourself checked as soon as possible as the waiting can cause you a lot of anxiety. Thankfully I have no further lumps or episodes os skin cancer.

Good Luck xx

positivedaybyday profile image
positivedaybyday in reply to positivedaybyday

Pop breast scan, these phones are a nightmare at times!!

kimmo profile image
kimmo in reply to positivedaybyday

Thank you for your reply and concern. I'm just waiting for the appointment now. I know what you mean re predictive text as my swollen fingers are always touching the wrong letters!

Vtoria profile image
Vtoria

I have a huge lump on my arm. Anyone have one removed?

Ricexxjm profile image
Ricexxjm in reply to Vtoria

Did on my forehead. Fatty tumors

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