AIP: Hello, Have you had experience... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,833 members5,407 posts

AIP

Poenyfan profile image
3 Replies

Hello,

Have you had experience with autoimmun protocol? I am reading about it everywhere, especially in the US seems to be a big success (?!)… this is my question about, basically. Have you tried it, do you keep it constantly, did it help somehow?

As mentioned earlier, I am just been diagnozed with scleroderma (capillar microsopy + blood test) all the remaining "fun" is outstanding… Have raynaud since more than 12 years (the time my doctor said, that was ok), todays sometime tired and hair loss, not sleeping well, sweating…. Seems I am luckier then the most.(?)… Of course, still shocked when I see the photos if I am searching for answers in the web...

To summarize, I would really happy to be able to keep the same status at least, thus I wonder if changing your diet / Lifestyle … whatsoever helped you to at least slow a little the process…

Thank you all

x x x

Written by
Poenyfan profile image
Poenyfan
To view profiles and participate in discussions please or .
3 Replies

My 15 year old son is following the AIP diet. He has Mixed Connective Tissue disease. Since changing his diet he has come off all medications and is really well. We’ve managed to reintroduce a few foods but not many. Reintroduction of food often causes a flare so we are very restricted. He takes some supplements along side his diet to ensure he is getting everything he needs. Would definitely recommend it. X

Poenyfan profile image
Poenyfan in reply to

Thanks LizzyCee, it helped me a lot. At least there is something I can take it in my own hands.

in reply to Poenyfan

That is exactly how I felt. My son had a terrible condition that I felt was totally out of our control. He relied on very toxic medications with lots of side effects and he still felt rubbish a lot of the time. Now he is off medication, and feels really well. He was 10 years old when diagnosed and 12 when we started to change his diet. Within days of changing his diet he started putting weight on again and feeling loads better. And I felt like we had regained control. Good luck. I would love to hear how you get on. There is a Facebook community “AIP n the UK” you can join to get support and ideas for recipes etc. X

You may also like...

waiting for lung function test

apart from some mild thickening which the Dr did not seem too concerned about and no breathlessness...

Bit of a strange one - let's talk sweating!

shuts down) the sweat glands also do the same (i.e go into overdrive and make you sweat more)....

White patches...does anyone else have this?

to appear about 3 weeks ago and seem to be spreading slowly. Thank you everyone.. Wendy

Finally People who are like me

some. Keep up the great work. Just An Update Just had my Nifedipine increased which seems to be...

Recently diagnosed with systemic scleroderma

being told it would be at least a year to see anyone. It’s all come as quite a shock to me, I’ve...