Hi everyone. I haven't received my diagnosis yet but I'm sure I will when I see a rheumatologist in 2 weeks. I'm quite convinced I have systemic scleroderma though I don't have any skin thickening yet. I've been struggling since my daughter was born 7 months ago, primarily with aching joints, especially my hips, raynauds and sensitivity to the cold, fatigue, tingling all over my body, strange skin burning on my back, face and hands /wrists and the past week my hands are swelling and getting hot and tight at night which is disturbing my sleep. I am terrified. I was wondering if anyone could tell me what to expect in regards to my ability to parent my children poverty the next few years. I am absolutely terrified at the thought that I might not be here to see them grow up, but I'm hoping that won't be the case. I'm worried however that my ability to maintain the house, cook and clean will be impacted. Will I still be able to dress them and Bath them and take them on outings and play with them and provide all the care they need? I have a 3 year old and a 6 month old, who so desperately need their mum around for a long time yet.