some people have recommended i tell m... - Scleroderma & Ray...
some people have recommended i tell my story to the rsa, how do i do this??
Hi Littlemissshy, in fact AHM in members directory is Anne Mawdesley who created the RSA or their website:
raynauds.org.uk/contact/con...
I also told them about the BBC - who've done a documentary about me - soon to be aired.
Good luck
That's kl when is the documentary on?
Eeek 13 days. 28th - the BBC did the last of the filming today, so all in now for editing lol. They rang me last night, I held my breath, thought they were going to say something like - nope we're not using your documentary I would have been relieved, but no they advised they definitely were - now I'm really shaking and nervous. The only person in my family who knows is my mother as there will be a few minutes of her and I. Not even told my son or siblings or friends etc.
what time???
What's it's called? Can't wait to see it 
do you know the time / channel
Littlemissshy - did you contact them?
i emailed them, i think i got the right email. but im in school now so i cant check til i go home as its blocked on the school computers....
You must share with us when they do get back to you.
xxxxxxxxx
i got a reply, but all they said was thanks, and would i like an info pack....?
Yes pretty much the same as when I advised them about the documentary 
ooo exciting no-one - what is the programme called ? Will keep a look out for it !
Little Miss Shy - if you email your story to the association, I am sure somebody will get back to you ! Write it as though it were ready for publishing ! Good luck !! x
Tuesday 28th May 10.30pm
BBC 1 - Wales - Week In Week Out. Called Wales and Pain.
oooo exciting !
well done you for sharing and raising the awareness !
Im in the north west so I am presuming that I will only be able to watch the programme on iplayer after it has aired ?
Post your airing time on the blog for everyone to see !
Looking forward to seeing you 
x
For days since I saw about the documentary I have tried to trace it but never thought it would be BBC Wales! I even emailed and got reply from Charlotte Moore (the new controller of BBC1 and has done many and varied documentaries) and she did not know of it! I spoke to BBC programme services, they could not find it so I have written to them to ask "Where is it and when is it on"? But I have not got Sky so suppose I will have to wait for Iplayer as someone else has said.
From Kevla Friday 24th may
Hi Kevla, Tuesday 28th May 10.30pm BBC1 Wales lol - eek I'm so nervous now.
Don't worry,no-one, you will probably find you will be a small segmant of the Half Hour and you will feel cheated of your time and trouble!! Let this site know what you thought of it for the benefit of those, like me, who cannot get BBC WALES.... and who hope to catch it on Iplayer later......Enjoy! regards, Kevla..
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