Hi, this is my first time ever... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Hi, this is my first time ever...

Rebecca1993Foster profile image

Hi, this is my first time ever posting like This! I normally keep myself to my self but latley I've been feeling really down about my scloroderma like it's distorting my life..

Along with the scleroderma I have been experiencing migranes, back and neck ache, muscle weakness, extreme fatigue, joint pain, nail loss, deformed ET looking finger the list goes on..

I posted this really just to talk To people who have the same as me so i don't feel so alone with it..

Please someone talk to me I feel so alone 😣

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Rebecca1993Foster profile image
Rebecca1993Foster
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4 Replies
fairy56 profile image
fairy56

Hi Rebecca, welcome to the site, you will never be on your own, we are a friendly and supportive group of people. Your symptoms are pretty much the same as mine, do you have raynauds? Do you take any medication? Anyway keep in touch with us all, and smile and wave, smile and wave x

Rebecca1993Foster profile image
Rebecca1993Foster in reply to fairy56

I have Reynolds like symtoms, but not confirmed with the GP .. I used To take methotrexate but come off that myself due to constantly being sick, what medication are you taking?

Redoralive profile image
Redoralive

Really random (slightly stalker-ish 🙈) side note but if your username is anything to go by we have the same name and are the same age. I feel your pain. Got really bad muscle weakness and recently been having awful headaches. Haven't lost any fingernails but my fingers started tapering off and ET fingers is a pretty decent way of describing them.

How long have you had the problems?

Rebecca1993Foster profile image
Rebecca1993Foster in reply to Redoralive

Haha no thays fine, ive been wanting to meet people because i feel so alone with this :( really depressed at the moment. Since I was 12 I've had the scleroderma, the ET 🤣 nail has been there for as long asni can remeber .. and the headaches started in 2008 2009.. it's seriously bringing my conference down..

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