Finally diagnosed with RA and Inflamm... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,844 members5,412 posts

Finally diagnosed with RA and Inflammatory Fasciitis instead of possible Scleroderma

TeriLynn26 profile image
1 Reply

After lots of tests and a visit to the Royal Free at London to check whether I had some form of scleroderma I now have a diagnosis of Inflammatory Fasciitis instead (which I know is good news for me - my rheumatologist says 'it is in fact similar but different'). The dermatologist did a small biopsy on some skin from my neck and also saw my elbows which have had rough skin for many years and said that I have psoriasis along with my rheumatoid arthritis. I have been treated with methotrexate (now in injection form), hydroxychloroquine which has been reduced from 2 tablets down to one, folic acid and rabeprazole. My throat had been given me a lot of discomfort but with the methotrexate injection and hydroxy tablets being reduced it now seems a lot better. I had tried doubling the rabeprazole a few times but that hadn't worked.

I started with various problems from January last year and the first time I saw the rheumatologist was August last year, I attended the Royal Free in April this year and am due to go again in a few weeks. The skin on my forearms was rock hard when I saw the rheumatologist and until she mentioned it I hadn't noticed the hairs had disappeared. They are now a lot softer and the hairs are growing back. My psoriasis on my neck is a lot better after Eumovate cream and the skin under the arch on my left foot. I still have a little stiffness in my hands and ankles but I can cope with that unlike when everything was at its worse and I struggled to open a bottle or move about easily. My only real pain at the moment is my knee after it made a cracking sound on crossing the road and I couldn't stand on my foot. My knee keeps swelling up but I'll survive and hopefully over a few months it will get better.

Just thought I would write something to give some people hope as it is difficult when you first start suffering and look up any advice on internet to help make yourself feel better.

Written by
TeriLynn26 profile image
TeriLynn26
To view profiles and participate in discussions please or .
Read more about...
1 Reply
Kathyborkovec profile image
Kathyborkovec

I’m happy you don’t have scleroderma I have that and rhemetoid it’s difficult but I think you will do just fine sounds like they’re using the right meds for you good luck with everything 😃

You may also like...

Possible Scleroderma

G I tract scleroderma without skin issues? Been suffering for 12 years with no diagnosis but...

Recently Diagnosed with Systemic Scleroderma.

past 6 months. I spent 12 days in hospital where I had CAT scans, MRI, lung function, & many...

Recently diagnosed with systemic scleroderma

least a year to see anyone. It’s all come as quite a shock to me, I’ve got a rheumatologist...

Newly diagnosed with systemic scleroderma

being diagnosed I had never heard of scleroderma (as I’m sure is the case with a lot of people) and...

Scleroderma recently diagnosed

seeking forum users experience with treatment with methotrexate which I’ve been advised I’ll be...