Systemic a scrosis scleradema - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Systemic a scrosis scleradema

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3 Replies

Am a man and asking if anyone else as got it systematic scrosis sclerdama

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zenabb

Men and women can have it although women are in the majority.

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Jensue

I've got it and am taking Methotrexate which has helped me. I also have severe Raynauds and take Liquid prozac for it but in small amounts (not like when taken for depression) & have just started on Sildenafil which is also helping. I have had Iloprost infusions but they didn't help very much - only lasted about 2 weeks.

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truerose

Hi am joan and I have Systemic Scrosis for 5 years now .My doctor his trying to get me on Tocilizumab..I have try Cyclophoshamide but that lowed my blood so it was stopped,then they tried me on Mycophenolate and the same happen my blood...I allso have Raynauds for a long time now do not take any thing for this.My doctor told me to go home hand wear gloves in your home try and keep warm ....What do you take for your Systemic a Scrosis I hope every thing goes all right for you ..Joan.Please let me no how you get on ..

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