Meds + Pregnancy: Hi all, Im primary... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

10,844 members5,412 posts

Meds + Pregnancy

crozza profile image
5 Replies

Hi all,

Im primary renaulds and I've taken nifedapine for as long as I can remember (15 years, possibly longer). We are however going to start trying for a family and last time I saw a GP she said that this med can cause miscarriages. She also said that most meds used would be the same.

Can anyone advise if there are any alternative meds I can try? I've just bought some Ginkgo Biloba which is herbal, but I'm not sure if this is ok re pregnancy or not (should've probably asked that).

Any help greatly appreciated.

Crozza

Written by
crozza profile image
crozza
To view profiles and participate in discussions please or .
Read more about...
5 Replies

I found when I was pregnant my Raynauds was not so bad. I have four children. I have had it for 35 years and have never been able to tolerate medication for it so I have "managed " rather than had treatment. In October however I had Isoprost treatment and it worked for me.I think you need to see a Rheumatologist. Obviously we are all different and I can only go on my own experience. Maybe you could be pregnant in the summer :-D. Best of luck.

in reply to

ILOPROST.

crozza profile image
crozza in reply to

Haha, unfortunately pregnancies last through at least one winter. I'll try for summer pregnancy though!

I'm waiting on an appointment with a rheumatologist. I don't find my meds help that much but they do a bit. Maybe I'll just try without for a while and stick with good gloves and socks (easier in the winter as feel a bit stupid wearing gloves on Auguest, though was necessary for me last year!)

Thanks Tukka!

SRUKadmin profile image
SRUKadminPartnerRSA

Hi Crozza

As previously mentioned, Raynaud's symptoms normally disappear during pregnancy. There is no clear answer as to why, but it is thought to be due to the hormonal changes. Raynaud's usually then returns when the baby is born. It would be best to speak to your GP about the safety of taking Ginkgo Biloba during pregnancy as they will know your full medical history.

Thanks

RSA

crozza profile image
crozza

Hi RSA,

Thanks for that. Very odd that symptoms disappear with pregnancy, sounds like that'll be a good bonus!

Guessing I'd be safest not to take any meds whilst trying as well as when pregnant given it can cause miscarriages? I've started cutting down on the dosage to wean myself off nifedapine just in case.

Thanks

You may also like...

Switching meds for Raynaud's

medication as always ok and healthy but now, I've been on meds and even after a year still can't...

Side effects of opiate pain meds for SSc.

as I've got to take opiate pain meds for my SSc symptoms (i've tried lots of other things) I've...

has anyone tried the meds to treat reynauds?

on going... I just wondered whether anyone has tried one of the serotonin uptakers to treat their...

Systemic Sclerosis symptoms during pregnancy

counter medication when it occurs. I have not taken any prescription medication and keep my...

Stopping Limited SSc meds temporarily

over the counter as you can do that in the UK. I’ve been googling and see if you can stop...