Shine On Conference 2014!: This year... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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Shine On Conference 2014!

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SRUKadminPartnerRSA
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This year our annual Conference is being held in Chester on Friday 5th and Saturday 6th September at the Mercure ‘Abbots Well’ Hotel. This year’s theme ‘SHINE ON’ is a warm, spotlight approach to share information, giving people the chance to get together from all over the country, to learn the latest news about their conditions, experience ways of managing better their treatments and hopefully enjoy themselves.

For those of you who are able to join us for the Friday we shall be having an informal meal and some light entertainment. On Saturday the conference starts at9:30am we have a packed day of speakers and presentations with a large breakout session at lunchtime for you to experience ‘healthcare activities’ and ‘one to ones’.

Our annual conference is a gathering of all our supporters but we welcome anyone who is interested in Raynaud’s and scleroderma, their families and carers to join us for this special day.

Tracey Spray, the newest member of the RSA who is responsible for organizing this year’s big event, said ‘We want people to leave feeling uplifted, enlightened and having made new friends, happier about managing their condition knowing there is support in every direction’

With internationally renowned speaker on the subject of Raynaud’s and scleroderma we have Professor Jaap Van Laar talking about the latest Stem Cell Research Trial, Professor Chris Denton will be giving us an update on the conditions. We also have engaging talks throughout the day on an Insight into managing Raynaud’s, the role of your specialist nurse and presentations on footcare, Digital Ulcers, skincare, pain management and exercise, from a wealth of clinically experienced Doctors, Clinical Specialist Nurses and other healthcare practitioners.

The lunchtime sessions will be longer this year allowing delegates to interact with various aspects such as massage with Keith Hunt, make up from Changing Faces and a range of practical therapy sessions from Will Gregory, Physiotherapist.

We do hope you will be able to join us this year? To read more about the day and for a full programme of events please contact Tracey Spray for more information: tracey@raynauds.org.uk or 01270 872776 9am – 5pm

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7 Replies
toftsie profile image
toftsie

How wonderful it all sounds. Hope to be there.

titanicus profile image
titanicus

Thank you for bringing this to my attention.

I shall start making arrangements to attend the Saturday conference.

Marvellous.

titanicus profile image
titanicus

Thank you for bringing this to my attention.

I shall make arrangements to attend the Saturday conference.

Marvellous.

titanicus profile image
titanicus

Because of various reasons I will be unable to attend the Conference(Saturday 6th September).

Will you have any recordings of the event that you would be able to forward to me?

I.E. Recordings, Minutes etc, with which I would be able to hear what was said?

I would be particularly interested in what Professor Denton, Professor Jaap Van Laar, and Dr. Bergonya Alcacer-Pitarch have to say.

Anything in written form would be greatly appreciated, or any information concerning the named Parties.

Kind Regards.

SRUKadmin profile image
SRUKadminPartnerRSA in reply to titanicus

Good morning

That is a real shame you can't come. I will look into this for you and get back to you.

Thanks

Best wishes

Lucy

SRUKadmin profile image
SRUKadminPartnerRSA in reply to SRUKadmin

Hi there

It will be recorder and shared through our website, so keep an eye open on it.

Thanks

titanicus profile image
titanicus

Thank you very much for your kindness, I appreciate it.

Regards