Was tested positive for Romberg's at Royal Free last month.

I have been feeling unsteady on my feet for over a year and was finally given the Romberg's test which proved positive. MRI on 7 December. Have searched the web for the causes and am dreading that the cerabellum (?) is being affected by Scleroderma. Mine is ss. Does anybody know of an incidence of this occurring? I

Am quite worried as I know the prognosis for this is pretty grim. But I would rather know the truth and deal with it however I am able. Would be glad of any replies.

[seekingfreedom]

I dont have any pearls of wisdom (sorry), but hope someone is able to shed some light for you. Its easy to say (because im the worst at doing it ) but whilst the web is a wonderful thing, it can also expose you to so much awareness and (perhaps) cause increased worry. Can you see your GP to talk through your concerns?

[Hidden]

Thanks for replying. You are right about the worries the web can expose us to. I will have to wait to see what the MRI reveals of course before I can seek further advice. Just a worry that's all. Take care.

[titanicus]

It is natural to be so worried. My Rheumatologist, when I first met him said, 'don't worry, I've got your back'. Have faith and you will be able to cope better. You are not alone. God bless you.

[Hidden]

Thank you. God bless you as well.