I wanted to thank all who replied to my plight in trying to get my appointments sorted at The Royal Free. I have been in contact with my consultant,s secretary who has agreed that admin is a shambles at the moment but to 'sit tight' until Septembr because there are to be a lot of improvements made to the appointments system. I had his assurance that as I have systemic and cutaneous scleroderma this is a very serious disease and there is no possibility of my being discharged. ( I have twice been told by appts that I have been discharged). So I am here to express gratitude to those who were supportive here on this site. I do so appreciate the sound advice given on this subject. Thank you very much.
Not really a question but.... - Scleroderma & Ray...
Not really a question but....
3 Replies
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Hi I am delighted for you that you are going to see Prof Denton and his team ! I truly believe that the support and expertise which he and his team have given me, have most definitely been of a huge comfort for me when trying to restore my well being with an agressive diffuse type and severe raynauds !
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