counting attacks

[adrianhillson]

started counting raynauds attacks today was gonna write em down but figured id be writing all day hands seem to be really stiff in this cold weather too

[Emma2]

It got really cold on Friday - it was -5 when I left the gym and it was agony until my car started to get warmer. I got home and found that I couldn't undo my shoelaces on my trainers so my partner had to do them for me. He also de-iced my car first thing for me today when it was -3. They say it will get milder again mid-week - we can only hope so!

[adrianhillson]

i had 8 attacks in 2 hours yesterday although only mild they are a pain in the errrrr fingers roll on summer

[CFBraban]

Hi Emma and Adrian, I have had Reynauds for about a year now (since pregnancy) and I have been experimenting with a simple finger insulation covers as I wanted to avoid systemic medicines which my GP suggested, My latest version worked v well this morning (-5 oC) in Edinburgh, and I was working outside a bit last week and managed to avoid any attacks. I was thinking I should look in to seeing if I could make some kits to send to people to make their own or make them up and send them, If you are interested and don't mind being a guinea pig, email me and we can discuss it. Just started using this site so not sure how you send a private message yet!

cheers Christine

[foxglove in reply to CFBraban]

Very interested in your finger insulation covers Perhaps you could message me with details? Or if you if you want to give email addres that would be fine I should be very happy to be a "guinea pig" !

[dawn1972 in reply to CFBraban]

I'm also very interested in your finger insulations. I have failed medications and I've been told to move to a warm climate. I have electric insoles and electric gloves which are not helping this year. I have continuous attacks in my hands, fingers, toes and hand which it takes hours to get them back. I have continuous attacks this year besides blue purple white and red I'm now having black episodes. If I try to exercise within two minutes I cannot feel my hands, knees, or feet. I also let my vehicle warm up for about thirty minutes but I still have episodes. Any change causes an attack on my if I get in shower if the wind blows even if its 85 degrees outside I still get attacks. The only recommendation I get is to move and the doctor where I live said they have never seen raynauds so bad. Unfortunately, its not that easy to move. I've had raynauds for 10 years and i ead told it would get milder but mine never did!!

[dawn1972 in reply to dawn1972]

My email: [e-mail]

[ceegee in reply to CFBraban]

count me in as a guinea pig also. Am also new to the site but am up for anything that will help my hands. I work in catering so this could be an advantage for me

[AmyLou in reply to CFBraban]

I would love to help out and be a guinnea pig. Just let me know what I need to do. Thanks!

[dawn1972]

Sorry autocorrect * @ymail.com

[adrianhillson]

hi would be very interested in anything that might help even considered using shrink wrap at one point im back at work next week fitting solar panels not looking forward to it a bit my email is [e-mail]

[karenconnie]

I would like to be a guinea pig and the finger insulation CFBraban.

[Marytsa]

I wanna be a guinea pig also... I live I'm a warm city and I have attacks all day everyday!!! HELP finger insulators sound like a great idea!