I was diagnosed with Sjogren's in 2001 when I was 33 (but was disagnosed with dry eyes when I was 18). Along with the dry eyes and mouth, it has also affected my lungs to the point where I now have 35% lung capacity. I had read somewhere that this is not atypical with primary Sjogren's and was wondering if any others out there suffered similarly? I take a range of supplements and have just been introduced to Silicea and was also wondering if there were any views on the helpfulness of taking this substance from a connective tissue standpoint?
My daughter was born through IVF and prior to commencement of the process, I had to be tested to ensure I was not a carrier of the Sjogren's gene, which fortunately I wasn't as we would not have been able to proceed. Immediately, post-pregnancy my lung function dropped by 15%. Good news is I've been stable at 35% for the last 8 years and put this down to Symbicort, vitamin D and iron, although none of these have been medically proven to be helping, I just "feel" they are!
I am thrilled to find out today that this Association exists.