I live in Gt Britain and was only diagnosed 3 years ago after experiencing a myriad of symptoms for the previous 48 years. In many ways it was a relief to get a diagnosis! Pretty well all the glands in my body are now affected but it is the neuorpathies that I struggle the most with. My gluten and dairy free diet helps my digestion but I am finding that the lyrica is not helping me very much. I am experiencing lots more muscle pain and sometimes don't know which way to turn. Why is this so?