The word ‘blog’ stands for ‘web’ + ‘log’.
Essentially, it is a place where you can log your thoughts, experiences, and ideas. Think of it as a digital soapbox!
You might be asking yourself, ‘What should i write?’. Well, really anything relating to how Sickle Cell disorder affects your life. This could be how SCD affects your family life, to the side effects you may have got from treatment, to your experiences of hospital stays during crisis, be it from an emotional perspective or physical. When we all put our thoughts on the table (figuratively of course), we as a community can then engage and begin to build on this information, which will in the very near future benefit us and future generations.
One of the best ways to foster a sense of community is to post a testimonial blog: when did you find out you had SCD or SCT and what has your journey been like since that point?
Blogs can be as short as you like so don’t feel you need loads of content. Simply post what’s on your mind.
That’s it. Now go blog so we can read and comment!
Many Thanks,
The Sickle Cell Society
Why can't anyone accept that trait can have symptoms nd even crisis???Why do you let us suffer? Why must we die before anyone believes us?
Oxbryta Receives FDA Approval for Treating Sickle Cell Disease
Not understanding
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Sickle cell trait but leg pains