nayan patel : hello. i m nayan patel... - Sickle Cell Society

Sickle Cell Society

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nayan patel

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15 Replies

hello. i m nayan patel from india i had sickle cell desease i m 27 years old

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nayan_patel
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15 Replies
jo19 profile image
jo19

Hi nayan, nice to meet you. What are your experiences living with sickle cell. Also when did you find out you have sickle cell. Hope you are fine.

nayan_patel profile image
nayan_patel in reply to jo19

i m fine when i m just 5 years old we find that i had a sickle cell but when there is pain in my bodyits look like a hell i m living a normal life when i m 18 years old there is a operated on me because of damage splin

jo19 profile image
jo19 in reply to nayan_patel

I am glad to hear you are living a normal life. Yes when we are in pain it does feel like he'll so I fully understand where you are coming from but as always we have to be strong. I hope you are keeping well. good luck.

nayan_patel profile image
nayan_patel in reply to jo19

i m from india where are you from?

jo19 profile image
jo19 in reply to nayan_patel

I'm from Nigeria

baba360 profile image
baba360 in reply to nayan_patel

Hello Nayan! My name is Baba, I live in London. I have Sickle Cell too.

nayan_patel profile image
nayan_patel in reply to baba360

i m from india but iwant to stay in a london but i have a sickle so i m not geting visa

baba360 profile image
baba360 in reply to nayan_patel

Is having sickle-cell an obstacle to getting a Visa?

I did not know that.

nayan_patel profile image
nayan_patel

i m from india

baba360 profile image
baba360 in reply to nayan_patel

Do you take or have any medicine for your pain?

😁

nayan_patel profile image
nayan_patel in reply to baba360

i m taking hydroxyurea capsual regularly but in a pain my doctor tefer me to take medicine

nayan_patel profile image
nayan_patel in reply to nayan_patel

and also substiute vitamin medicine

baba360 profile image
baba360 in reply to nayan_patel

Oh I see! I hope it makes a difference 😁.

jo19 profile image
jo19

Getting a visa might be an obstacle if coming to the UK as the argument will be that you will be a drain on the NHS. To be honest the treatment here isn't that different it's just that you don't have to pay for your treatment and prescription.

nayan_patel profile image
nayan_patel in reply to jo19

i know that here i have to pay every month 500rs i. e 5 pound for consult a doctor and 200rs i. e 20pound for medecine every month

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