why do I still suffer from painful attacks yet am 20yrs old.is somethg wrong with me?they say when u turn 19yrs,u only get attacks once a yr

[penny67]

Why do I still suffer painful attacks

hello,my name is penny and am 20years old.they say wn u turn 19yrs,u no longer get attacks but am 20 and I still get them.what is the problem?pls contact me on [e-mail].+256777382298 WhatsApp. The.

[bluebug]

What you heard is a myth.

You get attacks whenever.

However I suggest you write a diary or note on a calendar, what exactly you were doing, what you had coming up in the near future, whether you were cold, whether you were hot, whether you hadn't drunk non-alcoholic drinks for a number of hours, whether you were ill etc and when you got an attack. If you can't do it yourself get a parent, sibling or partner to do it for you.

Then you can work out whether it is:

1. Temperature

2. Stress

3. Dehydration

4. Other illness or your period

that triggers your attacks.

[penny67 in reply to bluebug]

Thankyou dear

[mmjegs12 in reply to penny67]

Don’t stress yourself, no alcohol and drink loads of water

[jo19]

Hi penny

I am not sure where you got that information from. I am 37 just returned from hospital. Firstly the pain never stops well at least for me. I don't know your patterns but they tend to stay pretty much the same unless you have interventions like exchange transfusions or may hydroxyurea or God knows what else is out there. Secondly the myth. Of the blood during labour in child birth is like I said a myth. It's important to speak to others like you are doing. For some people as they grow older it gets worse and for some, better. For some like me it remains the same. I know the condition that we have is extremely difficult but try as hard as possible to find someone or something that makes you happy. I can't promise anything like it gets better because doctors will do anything to keep your pain away including painful and intrusive.. I wish you the best.

[penny67 in reply to jo19]

Thankyou so much

[shankei]

Hi Penny

As the others have said, what you have heard previously is a myth. Sickle Cell is different for each individual, I have had crisis since I was a baby and I'm 41 now and still have them, whereas my brother had his 1st crisis at 16.

Winter is generally not a good time for us, I know my sickle is much worse anyway. So make sure you stay warm and hydrated and take care.