My son has sickle SCT and tires so easily, has frequent indigestion problems and stomach pain and is always thirsty and only drinks water. His primary doctor ruled out absorption or bilirubin illness. He dehydrates during illness incredibly quick, last time he got sick after vomiting a few times almost went into a metabolic acidosis, even after he was already at the hospital getting treatment. Sometimes he can see well sometimes he can't, even the optometrist doesn't understand he has even been evaluated in a a study by doctor instructors of a university school of optometry. I pick him up from after school and 80% of the time he is asleep. Where can I find more up to date information on SCT, or is my son one of them rare cases? Please Help
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