Hi there..I'm a 40 yr old female and had my 1st crisis at fifteen what we were told was I might have meningitis Not! Crisis number 2#after the birth of my daughter couldn't walk a cab driver had to pick me up off the street & bring me to my mother home bc I was in so much pain all I could say was her address for help.. 3#crisis after my son was born hospital stay two wks blood transfusion had. I am now a Jehovah witness and no longer will except blood. My last crisis whole body shut down hard to breathe couldn't even make tears Kentucky hospital refuse to help me bc I was believed to be a drug addict looking for a fix ,when I did get treatment I was treated like a criminal if I asked for pain meds..All in all if we don't get some new test done and soon someone will die all bc we Only have the trait Not the disease! Ps my daughter now suffers from the same crisis pain she met with a specialist who said no u can't have that you're only a carrier ๏_๏
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