This is more like a question for the sickle cell community, especially those living with the condition. My understanding is that there are some 15000 sufferers in the UK. Let's assume that half of that number are children. It still means there are over 7000 adults out there who could engage a bit more and help put sickle cell disease out in the public domain, such that it would no longer be a closet condition. Ultimately helping generate badly needed awareness. I don't see majority of sufferers doing anything to help generate awareness. Why is that?
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