hi! I’m in recurrence after being diagnosed with Endometrial cancer in August 2022. Had hysterectomy in August 2022, finished 6 rounds of chemotherapy (carbo & taxol in Jan 2023, and finished radiation in April 2024. Recurrence in Nov 2024. started chemo on Jan 17, 2025.
I’m a wreck! But love this treatment team!
Prayers for a complete recovery.
Aw, I’m sorry that you are going through this. I really understand. The disappointment of the cancer coming back is tough to swallow. So good that you love your team.
I’ve been on this journey for nearly 10 years with 4 recurrences. After chemo and radiation for my first recurrence, I was put on anastrozole, an aromatase inhibitor. About 5 months later, I had a second recurrence which was in my stomach muscle. I had interstitial brachytherapy for that and was then put on a cdk 4/6 inhibitor called Ibrance. Stayed on that combo for 7 years and am now on the anastrozole with Everolimus.
You need to learn everything you can about the kind of endometrial cancer you have. Ask for NGS testing on your tumor and genomic testing (what you inherited). It is possible to have more individualized treatments.
My recurrences have all been “spot treated” followed by targeted treatments to increase progression free survival (pfs). The current term is persistent cancer, but I call it being treated with the whack a mole approach. I feel good, swim (a lot), chase after grandchildren, and lead a busy life.
Once I made my peace with the fact that my kind of cancer recurs, I have been ok dealing with. It’s not to say I’m thrilled or don’t still go through some mourning, but I do snap out of it much easier now.
Best wishes to you.
Hi Merma- I am on year 9 of my cancer journey with one recurrence in 2019, so maybe just 5 years in remission. I currently am on anastrozole since 2020 and it seems to be working, which is my blessing. I am curious, how are you monitored after all these years? CT scans annually or every 6 months? Do you have your CA-125 taken? I just wonder how us long timers are monitored. Thanks for your insights.
That’s great that anastrozole only has been working for you!
I get PET/CT scans every 6 months because that was the only way they found my recurrences. The CA-125 is not helpful for me. It’s never gone above 7, even when I had a recurrence.
endometrial adenocarcinoma, grade 3
helloI’m Lorraine 
Up at night walking the hallway, again, due to chemo induced peripheral neuropathy…I’m so tired of hurting.. 
