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Interesting CA125 readings

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I am on daily Lynparza 8 pills Twice a day and Avastin every three weeks since December. My CA125 at the start of this protocol was 150 after a 3 or 4 month I was down to 50. Needless to say I was happy. Then it began to creep up, early June it was 105, I had a CT scan that showed no progression of disease. My next CA 125 were 110,117 and a week ago 138. I was totally besides myself. Had a PET scan last week and again it came back totally clean all spots gone. BUT, what did show up was was an inflamed left rotator cuff.

Well in retrospect I did hurt my shoulder when I ever so gracefully tripped and my big purse that weighs a ton slipped and pulled my shoulder down it hurt like crazy Ever since I have had trouble lifting my left arm and waking up in pain in the middle of the night. Well, I now see it coincides with the rise in my CA125

I have an appointment with an orthopedist and will start physical therapy

Hopefully this will make the CA 125 go back down. I know any inflammation can make the CA125 go up, I should have thought of that and maybe not stressed so much Lesson learned:)

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rppizio profile image
rppizio

Thank you for Sharing this info... we all have to be reminded of this important fact.

Neona57 profile image
Neona57

Thank you for this -it is certainly reassuring.

missa13 profile image
missa13

Hidden it can be so easy to get anxious with this disease!! And to put a lot of stock in CA125 numbers... Very glad to hear your scans came back clean, and I hope the physical therapy helps your shoulder! Sounds painful... xoxo

malka210 profile image
malka210

The stress of the ups and downs with Chemo never ceases to stop. I'm also

On avastin again after a 5 months of being off. It's a rocky road sister warrior stay strong.

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