Hello all. Just letting you all know that I’m starting Capecitabine now.
Just took my first tablets and hoping like hell I won’t be one of the ones who get H&FS really badly.
I know sometimes even being in a relationship doesn’t mean you get so much support, but being alone, in a large house, make me scared of having to deal with bad H&FS. I am very independent, but I do have the support of Aged care here in Victoria. A wonderful program where the government gives us a package of money that can only be spent on getting a helper in to try to keep people at home, rather than being put in a facility for people who need support.
I would rather be in my own home. So I’m hoping it all stays the way it is for now. Fingers crossed.
Written by
Timtam56
To view profiles and participate in discussions please or .
okay! Good news! Sending all best wishes and a call out for some pill angels to keep the HFS away 🥰
Aged Care sounds amazing….wish we had something like that here. Please know that, despite our current (miserable) situation, we dearly love our neighbors to the North!!! 💕
Have hope! I was on this treatment for five cycles and zero side effects. I did religiously moisturize my starting with my first day on the medication. I really took no other precautions in terms of washing dishes, etc. I hope you have the same good fortune than I did.
Hope this works well for you! As others have said, moisturize heavily and then try not to worry and make the most of each day. 😊 I even use Vaseline or Aquafor for moisturizing fingertips. All the best.
My wife, who has stage 4 terminal breast cancer met to bones is on Xeloda ( Capecitabine ) and is now starting her 8th cycle, it works wonders and 100% of her Cancer hot spots are gone on her last two Pet Scans. Her H & FS only darkened her hands and feet, no other side effects other than her taste buds are very bland. Good Luck and our prayers to you for success!
Wishing you success with the treatment and hoping you won't have any H&FS or any other side effects. Its only my first cycle and the only side effect I have is fatigue on my week off.The Aged care sounds fantastic you go for it xx sending love and hugs 🤗
I truly hope that this treatment works very well for you for a long time and any side effects will be easy to handle so you can still be independent. Sending you hugs and prayers.
I get tested for a lot of things regularly at the biggest cancer hospital in the Southern hemisphere. Peter MacCallum Cancer Hospital. So I’m sure they are doing the correct tests. I’m hoping so anyway.
hi Tim Tam- I was really bothered by HFS but it didn’t ever crack like some poor people but during part of the cycle I found it difficult to walk around my house. Don’t let them start you in a high dose.. and start using bolster cream which they say works.. I used 5 % urea cream myself. Most people do get some HFS but hope you don’t get it bad.
I’ve started, and I’ve started using any hand cream I have around the house plus some. I bought some 10% urea cream already because my hands were so bad on Piqray. I’m not looking forward to this ride. But I’ll see how I go. I don’t feel like giving up treatment is such a big step for me. I’ve been preparing myself for letting go for quite some time now. I just heard about another friend's partner who died suddenly recently, and I’m in shock tonight. He was a lovely man. Felt quite well, but in a routine check u[ found he had a rare kidney cancer that doesn’t show up much till the last moment. He was given 3 weeks and died within two weeks.
I’m feeling so much better in shock, and I think of how I’ve grasped so strongly to the edge of the cliff, going through all these treatments, and I’m wondering why.
But that’s just me. I hope this doesn’t make you angry or offend anyone in any way. But I really am questioning a lot in life right now.
I've been on Cape for nearly 4 years now and it has kept my cancer under control so far. I do have sore feet, some mild diarrhea during my week off (strangely) and annoying fatigue, but it's all manageable and worth putting up with in order to stay alive! By the way, I'm 82 and my secondaries (bone and liver) appeared after a gap of 30 years. I wonder if that is a record! Good luck with the Capecitabine - I hope it works for you - and sending positive vibes! Lots of love and good wishes.xxxx
I've been on Cape for 2 years. The good news is that I am in remission, after 5 years of trying other meds that only worked marginally and then started going to the wrong way! I was able to decrease the dosage when I wasn't functioning well and had some H&FS - not nearly as bad as some have gotten it though. So - although I do have some neuropathy and stay pretty fatigued, it's working well for me and I'm grateful. Prayers that it works for you with very little side-effects.
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
capecitabine question 
Doing home hospice now
Exemestane and Everolimus
Metronomic Dosing of Xeloda (capecitabine) (cape) is working for now
