Yowza!!! 😱 Stomach and lung chest cancer tumor progression while on Trodelvy.

[Hotlantaphatz]

severe pain in then ab and pleural cavity sent me to the emergency room! Not good guys! I am on Trodelvy. 3 cycles. And learned of the progression on the ct scan. Well the journey continues! Onc changing drugs

[Figletf]

Oh no! 😯 So very sorry you are having to go through this 😭

[Hotlantaphatz in reply to Figletf]

Thx Figletf!

[jersey-jazz]

Dear Hotlantaphatz -----This damn cancer! I hope that your doctor can figure out how to outwit it. I will send a prayer to. you. You've got the guts and spirit to get past this. XXX OOO

[Bettybuckets]

you seem so calm! I am in waiting room to see NP who will tell me why I can’t get doxil anymore… they texted me that I wouldn’t get chemo today! But is it because of the echo and bad heart or progression? I am about to find out. Doesn’t matter which but bracing myself to hear the news and start the search for next chemo. Blowing through them too fast… 5 chemos in 4 years.. but I feel the ascites and early fullness that is the harbinger of progression but my scan this week didn’t show a big progression just the ascites.. I feel your pain sister… the uncertainty is thr worst… and my lovely elderly doc is in surgery today so not sure how I can move forward with the NP… he is the decision maker. Let’s hope we both can handle easily whatever is thrown at us!

[Hotlantaphatz in reply to Bettybuckets]

Look, I am totally understanding what you’re saying, feeling. Your journey sounds very familiar! Hang on and fight! Xxx

[Nocillo in reply to Bettybuckets]

You’ve had too many meds. Something needs to take hold! 🤞🤞🤞🤞

[13plus in reply to Bettybuckets]

So sorry to hear you will have to change again. You having your doc out at this time reminds me of my experince at the end of last year changing meds when my doc litrally never returned, unexplained. I had to change meds again in September, only good news is that my doc suddenly returned! Yeah! I'm on Enhertu at this time and I feel good (!) so hoping that means it's working! Do you have any idea what your options are now?

[Totheriver in reply to Bettybuckets]

Hope things work out for you and things will go smoothly again. It is such a tough journey 🙏💕

[Bettybuckets in reply to Totheriver]

thank you! I wrote further up above this

[Totheriver in reply to Bettybuckets]

Yes I saw that.

[Bettybuckets in reply to Bettybuckets]

I am still sorting it out… feeling cheated out of enjoying these rare warm nov days .. with a week of medical trips! So frustrating and 2 hrs of traffic snarl last night and now they want me to go back in again for next few days. It’s been every day but one this whole week. But have to get it sorted or no chemo can be given… this is a heart problem. Today is the ablation doc. Darn

[TammyCross in reply to Bettybuckets]

At least it isn't progression?

[Bettybuckets in reply to TammyCross]

yes it wasn’t progression seen on PET on Monday.. but with my belly symptoms I had ti have an Abdominal CT scan.. and tonight feeling uncomfortable belly. So even though it has been everyday this week with med appts, I need to get it sorted and start back on some chemo. 🤞

[Praising in reply to Bettybuckets]

So sorry to hear this what is

[Praising in reply to Praising]

so sorry to hear this what is fullness and ascities?

[Bettybuckets in reply to Praising]

ascites is fluid in the belly…feels like you need to empty your bladder just immediately after you have gone to toilet. I had an Abdominal CT scan with comtrast dye today. The dye goes through out and allows them to see any weird blood supplies to tumors..

[Hopeful4Cure]

Totally feel your energy. Beth, you 2 since I am also on doxil, new version caeylx. Sending the positive energy. Prayers, extra prayers for all of us. Have to admit for me, with luminal a, no mutations, I should not be in this predicament and understand those that just say " I am tired and I have had enough". Being vocal, doing research and proactive still does not help. Many blessings

[Bettybuckets in reply to Hopeful4Cure]

I already miss doxil! I had hoped to stay on it and travel back to NZ- very convenient and I could get it over there… now have to figure out next chemo stay tuned.

[monkeygirl62 in reply to Bettybuckets]

And hopefully the next drug can be taken in New Zealand too. I know how important going to New Zealand is for you. I have a second primary cancer small cell lung cancer now and I am going to New Zealand for my birthday in June to see my dear friends there. They have been begging me to come. My sister-in-law Anne is going too and she is gifting this trip to me for my birthday. I am not sure what my health is going to be like then but Anne can help me if something goes wacky. I have had a small progression of my breast cancer and I will be going back on Ibrance this week. I had to go off it to do chemo and radiation for the small cell lung cancer now I also will be doing immunotherapy. I can still do the immunotherapy before or after my trip. I am only going two weeks. How long will your trip to New Zealand be for?

[Bettybuckets in reply to monkeygirl62]

Hello monkey girl 62…I am so happy for you to be treated with a trip to Nz to see friends! That is amazing. I am lucky to go for 6 weeks… all of Feb until march17th… I’m sure you will be fine in June… but can you celebrate earlier and catch the nice weather? June can be cold and rainy. Seeing friends will warm your heart though. I am going to spend most of my time hanging in waiheke island and North shore where I used to live. This is my view from my house looking out onto Winstone’s Cove in Torbay. I never tired of the view!

View from my house in NZ

[monkeygirl62 in reply to Bettybuckets]

Beautiful view. My friends do a B&B, they just built a new home just for that in Whitianga. So it being on the heels of fall/winter they won't have guests then so Anne and I will occupy the rooms. They have just have the two beautiful rooms for guests. They are also tour guides for their guests as well as others I believe. So we are doing the two weeks in their downtime. I am used to cold and rainy after all I live in Seattle. June isn't warm here either. I also just did the Alaska cruise another cold and rainy trip. Lol.

[Bettybuckets in reply to monkeygirl62]

Whitianga is so beautiful! You will love it! Lovely little coastal town with a really nice Hot Pools that you must go and soak in on a cold rainy day! The town is adorable and will be great for exploring the Coramandel Penisula… or if not up to big explore you can go to the local beaches… get great flat white coffees every day. Also there’s sale on air NZ right now ! Best prices to NZ just until nov22… only$699 each way direct from NYC… cheaper from west coast… hope that is helpful!

[Saltandlight]

Oh no-I’m so sorry to hear this. Only made it through two cycles of Trodelvy before landing in the hospital and being pulled off it. Praying your next option works well for you 🙏🏻.

[Nocillo]

Good to hear from you, but not the condition! I hope they figure it out! You’ve had so many things going on. Do you trust your doctor? Wishing you the best!

[Hazelgreen]

Sad to read! Please try no meds until your system shows signs of recovering! You can't be worse off with a little cancer...

[13plus]

That sounds rough. I'm so sorry you had progression quickly on that drug. Wishing you hte best for next line of treatment!

[Adele_Julia]

sending prayers to you sweetheart ! 🙏❤️🙏

[Artesa]

We are holding you in our hearts Hotlantaphatz. Kick that tordelvy to the curb and know that we've got you , giving you hugs and love.

[love2golfwell]

I am so very sorry at this news. I hope your doctor has a good treatment solution for you to stop this progression. Sending you hugs and prayers.

[LibraryGeek]

Sending love and hugs xx

[Dragonfighter]

sending hugs to you.

[embrace28]

Your spirit is so bright and light, i can feel it all the way in the Northeast. I offered a prayer for you this morning. Keep on fighting! The next therapy will just kick it!!!

[Totheriver]

Hoping the doctor can find a med that is not to hard on you but will stop the progression 🙏💕

[Bettybuckets]

how is the search going? Sorry in my commiserating response, I nearly took over with people adding support for me too. But back to you… I hope that you soon have a plan as I think the anxiety comes from not knowing.

[Oberammergaux2]

please know we hear you and are sending you all our best wishes (and virtual hugs!)……this is a long haul for you. Here’s hoping they find the magic combination to kick this to the curb for you. Please keep us posted!

[hurricaneheather]

makes the heart sad to read this. keeping you in my thoughts.

[Lilywallytootsie]

Oh Hotlantaphatz, I am so sorry you are going through this. This disease is so unpredictable. Sending you lots of prayers, hugs and blessings. Love, Hannah

[Tolife_18]

so sorry to hear that you’re having progression. I hope that the effective and tolerable treatment will be found to control it.

Sending you positive energy and caring hugs!

[Aprilfoolz1]

Hotlantaphatz , I'm sorry :/ thank you for checking in! We are here for you when you start your new treatment.

Bettybuckets you, too! Sorry to hear about your situation .

Sending you both love and prayers for the next treetment to kick the cancer to the curb !

[mariootsi]

So sorry

[monkeygirl62]

Any news on how you are doing? How are you feeling now? Did you get new medicals? Has your pain gone down? Prayers for you and lots of hugs 🤗 🙏.

[Hotlantaphatz in reply to monkeygirl62]

hi! I am now on Erubilin because of the spread to my tummy. Not good. But Hotlantaphatz is a fighter. Now have a palliative team that is wonderful! Hanging in there baby!!!!