does everyone take the anti nausea meds before taking the kisqali?

[jltorcz]

I can start the Kisqali tomorrow and I am told to take ant nausea medication 30 minutes before. Does everyone do this?

[seniorcitizen]

I have not taken any anti-nausea meds prior to taking my kisqali which I have been on for 5 cycles now. I have some meds in case I need them but haven't needed them at all. I am 77. Good luck!

[jltorcz in reply to seniorcitizen]

thanks for the quick response. I will try this morning and hopefully will be fine. Any other side effects you find particularly difficult?

[seniorcitizen in reply to jltorcz]

I have not had any significant side effects. I have some fatigue but what is due to age and what is due to cancer meds? Wishing you will and let me know how this goes for you.

[jltorcz in reply to seniorcitizen]

will do.

[Figletf]

I have not taken Kisqali but before my Enhertu infusion the nurse always gives me anti nausea meds which helps for a couple days

[Lilsusie]

I did not need anything for nausea. The drug was easier to tolerate, for me,than Ibrance.

[jltorcz]

so far so good!

[Hazelgreen]

I've now been taking Kisqali for almost 2.5 years. I wanted to accustom my body gradually so I started with 200 mg, and worked up to 600 mg over a period of four months. By the 8th cycle, I found my neutrophils were so low, I had to take 2 weeks off. I then decided that the 3 weeks on, I week off made little sense. I read research which suggested that a 5 days on, 2 days off cycle worked for Ibrance so I copied that. Now, a 28 day period contains 20 days of Kisqali instead of 21.

A weekly cycle of 5 days on and 2 days off allows one's neutrophils to stay reasonably high. I'm now checking to see whether I require 600 mg all 5 days. I'm able to track my cancer antigens when I do bloodwork so it's obvious to me if they start to rise as I cut back on Kisqali (which is powerful medication so has undesired effects as well as fighting cancer).

[jersey-jazz in reply to Hazelgreen]

Dear Friend--- Well done in being in charge of your medication/health! I love and admire that. You must know a lot more than the vast majority of us poor souls.

[Hazelgreen in reply to jersey-jazz]

Thanks for the kind words! I have a doctorate in clinical psychology which is not the same as a medical degree. However, it is easy to find medical references using Google for any potion like Kisqali. If there are unfamiliar terms, I simply look them up. In my experience, physicians are too busy making money to read research...

[Hazelgreen]

P.S. I think Kisqali does lead to mild nausea in my case, but I've not added anti-nausea medication to the arsenal. My nausea seems to subside within a few hours of my taking Kisqali.

[jltorcz in reply to Hazelgreen]

I am starting on the full dose. When I mentioned these other protocols he was skeptical but will see how my neutrophil count is in 2 weeks. He does want me to have the blood work checked every two weeks.

[Hazelgreen in reply to jltorcz]

That's good! Make sure he has the cancer antigens checked along with the standard measures. I always add CEA (or CA for cancer antigens) to the bottom of the form I'm given to have the bloodwork done. I only want to take the minimum dosage of Kisqali necessary to keep my CA in the normal range.

As an aside, since I'm now 78 years old, and am aware that cancer indices tend to increase with age, I'm starting to wonder what the normal range is for my age group???

[jltorcz in reply to Hazelgreen]

I don’t think I can control my treatment options as you do but you sound like you are very knowledgeable.

I think I will trust my doctor.he seems to have the best intentions for my treatment.

[Dragonfly2]

hi! I always had nausea meds on hand when I took Ibrance… and now I keep them on hand for the Piqray. When I did have a “moment” I quickly took a tab and it zapped it right away. To your point, nausea meds generally work quickly but if you’re more comfortable taking the pre-emptively… that’s fine too. Best wishes !

[TammyCross]

Have been on Kisqali for three weeks. Nausea not a problem.