Good end to a long year…: I wanted to... - SHARE Metastatic ...

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Good end to a long year…

Glas0824 profile image
23 Replies

I wanted to share some good news and hope. In spring I discovered after 3 1/2 year my bone disease had spread to my liver. Leterzol and palbociclib was no longer working. In the summer I moved to Fasolodex and a second trial drug. I felt okay, but some stomach side effects. In August I discovered it had failed me completely and my growths had doubled. I then caught covid and finally mid September started capcitamone. Three rounds In everything has shrunk by approximately a third and no spread. I feel fine and finding this drug okay. I wanted to share as it has been such a hard year and I know how hard it is at times to keep the faith and have hope. ❤️

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Glas0824 profile image
Glas0824
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23 Replies
stardust1965 profile image
stardust1965

I am so pleased for you that you have had a good response with Capecitabine. Long may it continue.

Thanks for the update.

Ramona-1973 profile image
Ramona-1973

congrats dear

Beryl71 profile image
Beryl71

I am glad you have found something that works for you. It must be so unsettling changing meds. Long may your improvements last! X

Archiedog profile image
Archiedog

lovely news xx

love2golfwell profile image
love2golfwell

I am so happy that you are having good results with your new protocol and not having side effects. I hope that this medication will continue to shrink your tumors and keep you stable. Sending you hugs and prayers.

Justme153 profile image
Justme153

Thanks so much for sharing. Its always scary to have to change treatments. We are scared of what our side effects will be and dont want to give up quality of life. I do realize everyone responds differently to medications but it helps knowing that someone has a good response to a drug that we may eventually be asked to take also.

Bettybuckets profile image
Bettybuckets in reply toJustme153

well said! Gives me hope as I think capeciabinr is up next for me too!

Gingerann1 profile image
Gingerann1

Thank you for sharing and praying for you to continue getting good news and feeling great in the New Year!

Dragonfighter profile image
Dragonfighter

this gives me hope

Shafight profile image
Shafight in reply toDragonfighter

gives me hope too

Shafight profile image
Shafight

thanks. I love your good news. My bone mets spread to my live. I was afraid it was a death sentence

embrace28 profile image
embrace28

Thank you for sharing this good news. We all needed to hear more stories like yours!! Keep it going. Merry Christmas indeed!

Waffles1 profile image
Waffles1

That’s the good stuff!

ba5083 profile image
ba5083

Fantastic News! 2022 has brought bad news to many of us. Taking a trial drug requires courage. So happy capecitabine is working. Thanks so much for Sharing!

Totheriver profile image
Totheriver

so glad that this is working for you. Hope you will continue to feel good and that this drug will work for a long time💕. I just got my results from my scans and everything is stable. I would like to hear things shrunk but have to be satisfied with this, it is my first line of treatment...ibrance and letrozole.

Aquadog profile image
Aquadog

How wonderful you’re having success with this new drug! Hope it works for a long time.

PJBinMI profile image
PJBinMI

Thanks for sharing your wonderful news! Such a big and quick reduction in this lousy cancer is great, and feeling good is even better! This is often such a busy time of the year and a good time to feel well. I hope you get to share good time with family and friends! I'm a long timer with MBC (nearly 19 years) and Capecitabine has been around either all or most of that time. It's also called Xeloda and the women I met who were using it early in my cancer journey usually called it that. Most of them did well for quite awhile on it--years, not months! I hope you will feel good and benefit from it for a long, long time!

NPmary profile image
NPmary

Thanks for sharing. Such good news.

Mumberly profile image
Mumberly

it’s great that you have good news after what you’ve been through this year 🥳

These unexpected changes could happen to anyone of us, at any time. I’m so appreciative to be a part of this supportive group 😊.

Enjoy the festive season.

Kim

Hazelgreen profile image
Hazelgreen

Congrats on the excellent news! Given what you have been through in such a short time, I can't think of anyone more deserving!

Best of wishes, Cindy

mariootsi profile image
mariootsi

Keeping the faith!

AuntC profile image
AuntC

What wonderful news. Have a Blessed & very Merry Christmas.

Hopeful4Cure profile image
Hopeful4Cure

Super happy for you. I have been on cap since May and not much has changed. Just had my pet yesterday, blood test too, so we will see next Monday the 12th. Again some meds for for some and some don't even if they have the same type of dx. I am er/pr + her2-(or low) not sure because it states on my forms sish (2+, sish negative) I don't know what this means. I have been on Anastrozle, then ibrance and faslodex and now capecitabine and my tm's are just rising up to 364. We'll see if uping the dose has helped.

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