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side effects of fulvestrant especially weight gain any comments? thank you

visitingnurse profile image
18 Replies

side effects of fulvestrant especially weight gain any comments? thank you.

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visitingnurse
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18 Replies
Adele_Julia profile image
Adele_Julia

I haven’t experienced weight gain with Fulvestrant (Faslodex). And I need to gain weight !

8576 profile image
8576

I was overweight when I started Fulvestrant and I gained more. Maybe it was the thickening of the uterus wall which turned out to be negative. Since last Christmas till June I lost weight steadily and stopped at 150 lbs. Don't know why other then the change of meds.Hope this helps.

Cheers, June S.

visitingnurse profile image
visitingnurse in reply to8576

Hi and thank you for replying. at least I am not alone. stay well.

AvidBooklover profile image
AvidBooklover

Any lack of estrogen in the body facilitates weight gain, which is why women gain after menopause. My doctor said the only cancer where you gain rather than lose is breast cancer!

visitingnurse profile image
visitingnurse in reply toAvidBooklover

thank you so much. stay well

morty87 profile image
morty87

I was the told the same thing. If a breast cancer patient loses weight, there is a concern. I've expressed my concerns of weight gain for the past two years, but my scans are excellent!

visitingnurse profile image
visitingnurse in reply tomorty87

Hi , I guess gaining weight is the least of our problems. thank you for taking the time to answer. stay well

Beattheodds profile image
Beattheodds

I was told by onc nurse when I started Faslodex that many patients on med have experienced weight gain. Yes, I’ve put on a few but the med working so that’s ok!

visitingnurse profile image
visitingnurse in reply toBeattheodds

Yes I agree. thank you for answering . stay well.

Kruza profile image
Kruza

I am on Kisqali and have gained a lot of weight too, but I figured it was also the steroid which made me eat a lot more than normal.

visitingnurse profile image
visitingnurse in reply toKruza

thank you for answering. stay well.

Gingerann1 profile image
Gingerann1

Hi! I have lost weight on my combo of Ibrance and Fulvestrant over the 22 months I have been on this first line combo (about 12 lbs.) which has been gradual. I really only feel like eating one meal a day so it’s more about that change. Other side effects attributed to both meds are skin and hair (texture and thinning from lack of estrogen). The bottoms of my feet are peeling as well as the skin on my fingertips. Occasionally I feel “wonky” for a day or two each month but that’s about it. Combo got me to NED in 15 months so I will stay the course until it stops working and I have to make a change. Lin

visitingnurse profile image
visitingnurse in reply toGingerann1

thank you. be well.

Nuff profile image
Nuff

I’ve been on fulvestrant for a little over a year. No weight issues. However, I was consistently constapated until I started Verzenio which causes diarrhea and bloating. A gastrointestinal roller coaster.

visitingnurse profile image
visitingnurse in reply toNuff

thank you for taking the time to answer, appreciate it. be well.

FaunShea profile image
FaunShea in reply toNuff

I am on Fulvestrant and Piqray , I got diarrea from the Piqray. I have been taking Organic Aloe Vera juice , about 2 ounces before bed on an empty stomach with a few drops of colloidal silver. It has helped me to not get the diarrea .

Hope that helps . 💗

Hotlantaphatz profile image
Hotlantaphatz

On faslodex for year and ibrance. Yes weight gain. I contribute it to the meds and menopause mostly. My appetite has decreased. But not the weight. The meds make me feel a bit tired so not exercising as I should.

visitingnurse profile image
visitingnurse in reply toHotlantaphatz

hi thank you for responding! Be well!

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